Browsing Tag

cancer

cancer, Fear, Gratitude, Guest Posts, Heroes

Masks

October 31, 2015

By Joules Evans

It was the best of times. It was the worst of times. This is a tale of two masks, this mane and this zebra pencil. It’s a comedy about a tragedy. One of my own doing.

But first, a tale of two sons.

Act 1: Matt. Matt has always liked (and still likes) to dress up as his heroes and supmatt3erheroes. Davy Crockett. Indiana Jones. Andy (from Toy Story). Mario. Siracha hot sauce. Spidermat, I mean, Spiderman. The thing about masks is they hide our true identity. When Matt puts on his Spidey mask HE IS SPIDERMAN. Matt is underneath, but hidden. It’s a pretty epic mystery. Like how nobody spies Superman underneath Clark Kent’s glasses. But the other thing about masks is they can also reveal. When Matt puts on his Spidey mask he is revealing something about himself.  Inside, he is a superhero. In his own way, he is and has always been out to save the day, save the girl, save the world. In a sense, in essence, HE IS SPIDERMAN. Even without a mask. And he has been all his life. Once when he was 5 or 6, we were at his little brother’s baseball game and it started raining. My little superhero took off his mask, in this case the shirt off his back (but to me it was a superhero’s cape) and put it on the bleachers for me to sit on so I could stay dry.

Act 2: Mikeyy. Not surprisingly Mikeyy followed in his big brother’s steps as far as dressing up as mikey1superheroes. Superman. Michael Jordan. Michaelangelo. Daniel Boone to Matt’s Davy Crockett. Buzz Lightyear to Matt’s Andy. Luigi to Matt’s Mario. Batman to Matt’s Spiderman. One thing that was revealed early about Mikeyy was that he is and always has been a peacemaker. And later, when he sometimes ended up dressing up as the bad guys because all the good guys were all, already taken by everybody else, it revealed something else about him. Like when he dressed up as Voldemort for the midnight premiere of the final Harry Potter movie. Mikeyy shaved his head AND HIS EYEBROWS. What it revealed about Mikeyy is commitment to the nines. He was Voldemort that night. Not only did he win best costume, but everybody in the theatre wanted their picture with him. What it hid was this mama’s utter shock at seeing my baby boy bald all the way down to his eyebrows, since I’d just grown mine back from fighting cancer. It was like looking in a mirror. Like I was seeing my own reflection, back in time.

Act 3: It’s just hair. That’s what I tried to tell myself when I found out I had breast cancer and that the chemo was going to be an ultimate wardrobe malfunction and make my hair fall out. #tbt to August 20, 2008. THE superpowerinciting incident of all inciting incidents in my life, in which this mask was lifted. My cancer… (yes, mine. I own it; it does NOT own me. Or define me. But it is part of my story. My story. Continue Reading…

cancer, courage, Guest Posts, healing, Yoga

My Love Letter To My Yoga Teachers

October 30, 2015

By Alexa Shore

At 44 years old, I never thought I would get cancer. I never ever thought I would get it twice.  I never thought my yoga practice would save my life.

I knew something was wrong. I felt nauseous, had food cravings, felt as if my hair was falling out— was I pregnant? I went to the doctor to get a blood test and physical examination. I was handed a slip for a mammogram the following week.  That weekend, I went for a hike. I felt a lump. I went back to the doctor.

My oncologist said I was “lucky” after being diagnosed with “early detection” aggressive HER2+ breast cancer. Lucky?  That I have cancer? The second time I got breast cancer, I heard the words again. I finally got it. Both times, yoga had taught me to be so aware of my body, that I knew something was wrong. The second time around, I had the voice to speak up and say something was wrong – again. I caught my own breast cancer, twice, before it could metastasize to my brain, bones, liver and lungs.

I was healthy and I practiced yoga. I was not immune to cancer. People asked me questions about diet, environment, and personal habits to try to understand why I got cancer, and then, why it came back. I wanted to understand too.  I was told by one doctor “cancer creates change” I began to think …

I am a single mom, love my children, my family, my friends, my work, yoga, sunsets, and dancing. Change what? My body was strong; my mind positive and optimistic. So I sat and thought. How is Alexa? Did I truly have balance? Did I make time for me while juggling everything I did for everyone else?  Was I stressed? Did I feel resentment that I did not have time for myself? I bought gifts for myself and traveled to amazing places, but what about me? My spirit? Is this why I got sick? Could I have actually enabled cancer to grow? Continue Reading…

cancer, courage, Grief, Guest Posts, healing, writing

Half A World Away (fugue: unfinished)

October 11, 2015

By Jennifer McGuiggan

I’ve been away: Out of town. Out of state. Out of this time zone.

I’ve been away: Out of words. Out of tears. Out of time.

Out of time: To have no time left.

Out of time: To be outside of time.

* * *

Some people believe that God is outside of time, seeing the whole story from start to finish before it plays out for us mortals. This theory allows for predestination, the idea that God not only sees the whole story but also has ordained it, including who receives eternal life and who, well, doesn’t. This kind of predestination thinking seeps into the highs and lows of human existences. Horrible things happen and some mortals leach comfort from platitudes: This is all part of God’s plan. Everything happens for a reason.

I believe that everything happens for a reason insofar as I believe in the commonsense law of cause and effect.

Yes, things happen for a reason. One thing causes another. We can reason it out:

My friend got breast cancer.
She had treatment.
The treatment worked.
She got well.

My same friend got another kind of breast cancer.
She had treatment.
It didn’t work.
She died.

* * *

Life is a series of If/Then statements.

The day after my friend died, I flew across the country for a trip I’d had planned for months. The older I get, the more nervous I feel on planes. With each takeoff, landing, and turbulent bump of this trip, I thought to myself: If Christy can die, so can I.

This wasn’t a recognition of my own mortality. I’ve been well-aware of that for years, like a stone in my shoe mostly obscured on a daily basis by the padding of a well-placed callous. Rather, this thought was a comfort, almost a feeling of empowerment: If my friend who loved life so much could die, well, then by golly, so can I!

* * *

The week after I returned home, my mother had a scheduled surgery at a hospital an hour from my house. During her five days in recovery there, I drove to the hospital. I sat. I drove home. Repeat.

None of us knows how much time we have. Continue Reading…

courage, Guest Posts

A Letter To My Son

August 25, 2015

By Susan Rahn

Dear Son,

You just turned 16.

It seems like I blinked and you went from a curious toddler to a handsome, bright young man with such a bright future within your grasp. I so excited for you and can’t wait to see what path you choose for yourself. I’m confident you’ll choose wisely.

There is so much I want to tell you but I know how much you hate ‘mushy’ letters. This will not be one of those. This includes important things to remember for when you choose a partner to share your life with.

You’re probably shaking your head at me because of how things didn’t work out with me and your Father. I may not seem like the best person to be doling out advice but I have a very unique perspective that I didn’t have before.

Obviously, you’ll want someone who loves and respects you. You’ll want someone that you can laugh with and share memories with. Everyone does. You’ll also want someone who drives you a little bit crazy with the particular way they do things. It’s OK. It will remind you of why you fell in love in the first place.

You’ll want someone who shares some of your interests. It’s OK if there are some differences. If you both liked all the same things life would be boring.

Now pay attention because this is important. This is something few are told and even less consider when choosing a partner…ready?

Be very, very certain that if your partner or you ever have a significant health issue that both of you will be committed to each other. That you’ll support each other emotionally because that’s so important. Neither of you can ‘check out’ emotionally because things get scary. Be sure that you’ll both dig your heels in and support one another. Don’t be so selfish that your feelings become more important than her’s regardless of who is ill. Continue Reading…

Grief, Guest Posts

Johnny Cash, Eve, Me, That One Guy, and Maybe You

August 5, 2015

By Nick Belperio

The statue was naked, and I was nine, and the first thing I thought was, Her privates are out in public.   In the hush of the art museum, I snickered like someone much younger, like a seven-year old.   Mom squeezed my hand, nodding at a small plaque on the pedestal.

“Can you read that, honey?”   The first word was easy.

“Eve,” I said and sounded out the rest.  “Dis…con…SOLE…eight?”

“Disconsolate,” she corrected, emphasis on the second syllable.

“What’s that mean?”

Mom regarded the statue for a long moment:  Eve towered over us, her smooth face pitched heavenward, a serpent twining her ankle.   “More than sad,” she said.

“Why’s she so sad?” I wanted to know.

“She was thrown out of paradise.  Cast out forever, along with her husband.  That’s why.”

I looked it up when we got home:  Adj., without solace or consolation; hopelessly unhappy.  Mom was right:  more than sad.   Nine year-old me shrugged, filing it away with the other big words I knew that no one ever used.

It came back to me thirty-some years later, during a typically sclerotic Los Angeles rush hour.  As I inched homeward on Pico Boulevard, I glanced in my rearview mirror:  the driver of the SUV behind me was crying.  Really crying.  White man in a suit, early fifties I guessed, and in the grip of a strenuous bout of weeping.  A woman in the passenger seat offered him tissues and awkward half-hugs, but he looked beyond comfort.  This guy was distraught.  Keeping my eyes on traffic was nearly impossible.

He bawled openly, his face red and contorted, the mouth gaping; every once in a while, you’ll see an infant wail with such abandon, but a stranger?  An adult?   Never:  It seemed extravagant, to give yourself up to sorrow so fully, a luxury somehow, and also unseemly:  this level of sadness usually insists on strict privacy.  He’s losing it, I thought.  Why doesn’t he pull over?  Doesn’t he know people can see him?

And that’s when the word first returned to me.  Presented itself, fully-formed:

Disconsolate, in my mother’s soothing voice.   Ah, yes.  Disconsolate, adj.:  illustrated—dramatized, in fact—right here in my rearview.  I watched greedily, until I turned my corner and left them.  I don’t remember the make of his SUV, or its color, or the color of his hair; but the anguish on that guy’s face, how pure and unmitigated it was, has never left me.   That I remember.  I recognize it, now that I’m in my fifties.

Aging, it seems, is an accumulation:  of years and then decades, of course; of knowledge and experience, sure; of grudges and injustices and mysterious bruises, certainly.   Sometimes aging brings wonder—Can you believe we’re in our fifties? my friends and I whisper incredulously.  We’re officially middle-aged!—and sometimes a kernel or two of wisdom.  Always, though—always—it brings loss of some sort; we know this.  Losses come, and sometimes they multiply; adulthood stacks sadnesses and disappointments like firewood out back.   Look at your friends.  Look at mine. Continue Reading…

cancer, Guest Posts, healing, Inspiration

On Fighting Cancer The Second Time Around

June 9, 2015

beauty-hunting-jen-logo-black1-300x88By Shauna Zamarripa

In 2007, things were going really well for me. I had just gotten my residential real estate license and was killing it despite the fact that the market was in the crapper. Back then, I had learned quickly that foreclosures and short sales was where the money was at, so I speedily obtained my CDPE (Certified Distressed Property Expert) designation and was off to the races. And man, oh man, was I winning. I was the preferred listing agent for several banks and acquisition companies. And business?

Well….business was GOOD.

It was also right around this time that I had begun blogging for major websites like Yahoo, CNN Money, MSN Money and even found myself smack dab on the front page of Realtor.com.

And that made business even better.

I had begun developing my own model on how to use blogging for lead generation and business building. And it was going GREAT….until the other shoe dropped.

I got sick. Really sick. I had gone in for my annual OBGYN exam. A few days later they called to tell me the results were abnormal. When I went back in for more tests…that was when I found out I had cervical cancer. Stage 3.

I was 29 years old.

I was devastated.

Upon hearing the news, I went home and didn’t get out of bed for two days. I didn’t say anything to anyone, and many people even close to me didn’t know what I was dealing with. I refused to ask for help. I refused to let anyone know how hard it hit me.

I went to my next appointment alone (which I was fine with), as they begun freezing the cells. It hurt like HELL. But I powered through. Then? That’s when they started the chemo. And while I didn’t think anything could have been worse than what I had already endured, that was. Far worse.

There were days I couldn’t feel my hands or my feet. I never told anyone. I totaled three cars in a year, thanks to my stubbornness, but didn’t lose my life. There were days I couldn’t get out of bed. Some….because I didn’t want to, others because I just couldn’t. I was too tired. I was nauseated and exhausted. I could barely function. I was fuzzy and lost.

It was at this point that I had to give up my real estate career and focused on blogging full time. I was too sick to do much of anything else at the time.

But, as I got better, the more I wanted to blog and the less I wanted to do real estate. By 2010, I was healthy again. I felt like myself again. The steroids and the depression medication, however, caused me to gain a LOT of weight over the past couple of years. But I fought that back off as well. I worked out, ate right and lost it all. By 2011, I was looking a LOT better.

Then, 2012….tore my world apart. Secrets, lies and devastation took me down a rabbit hole that I would wish upon no one. Ever. And, even though I was cancer free, I wasn’t sure I wanted to live anymore. Yet, as I looked into my all three of my daughters eyes, I realized that wasn’t an option. They still needed me. So? I stayed. All the while never telling the people I should have told about much of my struggle. Because it just wasn’t their business. But, moreso because, when you go through hell, you just don’t want to talk about it anymore. Because you’ve felt it, you’ve dealt with it, and it became this part of you that you would rather forget than remember.

And that’s okay. You’re allowed to do that.

2012 saw a final separation of myself and my husband of 17 years. 2013 had me falling in love again. It also saw me through a house fire that nearly claimed my life….and something that created a lot of change. I remodeled my house and moved the (now 19-year-old) twins out and moved myself and the 13 year old in with the man, the love of my life, a man who, in 2014 I married – despite my saying repeatedly I would never get married again. And 2015 brought back an old friend…my cancer.

Except this time, things were different.

When they told me I needed more tests, something in me knew that this time was going to be worse than the last one. And even though everyone said “I would be FINE,” I knew (somehow) that this time wasn’t going to be as easy.

Fuck.

I hate when I’m right. Continue Reading…

Binders, cancer, Guest Posts

Twisted Sheets and Gaping Holes

June 7, 2015

beauty-hunting-jen-logo-black1-300x88By Rebecca Chamaa

I am in the middle of my second breast cancer scare.  Last year at this time, I was going through numerous tests, mammograms, ultrasounds, and visits to specialists.  There were the phone calls, “Well we didn’t find anything, but we want you to get another test.”  There was the waiting.  There was my heart that races the speed of a marathon runner whenever I enter a doctor’s office.  Again, there was the waiting.

In the midst of all of that, and again today, I think about dying.  Mostly I think about my husband.  What will our bed look like if I no longer take the right half?  He jokingly asks me often, “What do you do while you sleep to get the bedcovers to look like that?  It’s a mess.  They are all twisted.”  If I die, will he wake to a bed that only needs a little adjusting to be perfectly made?

The hole that either of our absences would leave in this house is like a crater – it couldn’t be walked around, it couldn’t be ignored, it would be unavoidable, and all consuming.  The edges would be where the rest of our life was hanging, hanging over an opening that would threaten to swallow the one left behind.  Swallow?  How would either of us eat again after sharing all our dinners at the little table built for two?

I told my husband yesterday, that if I have cancer, and I am dying, that it isn’t all bad.  “I want to die before you,” I said.  “What?”  He asked.  “That is so selfish.  Okay, you can die before me, but not now.  Not this young.  I want to retire.  I want to go places.  I have plans.  No, you can’t die this young.  Not now.” Continue Reading…

cancer, Grief, Guest Posts

Scared

May 25, 2015

beauty-hunting-jen-logo-black1-300x88By Trish Cook

“Scared,” my dad croaks, pointing painstakingly at me, then my brother, then my mom.

It’s an understatement.

We’ve summoned his personal physician to our home today to hopefully deny, but probably confirm, our suspicions: The cancer has gone to his brain.

We hold our collective breath as the doctor asks my father, “Who is the President of the United States?”

An underwater, foggy pause. Finally, Dad replies, “Reagan.”

The three healthy people in the room exhale a sigh of relief. He got it right! This must count for something, we think. A small shred of hope still inhabits the homey little den we’re all crowded into. Our prayers, crossed fingers, and wishes on stars and eyelashes might yet magically release him from cancer’s insidious clutches.

My dad is only fifty-two on this day. I am twenty-four, though, so both he and the non-descript middle-aged male doctor seem something close to old to me. Not old old, sitting in a rocking chair waiting to die old, but old enough to have really lived, to have really made it count. I hold on to this thought, stroke it for comfort inside my head like a beloved baby blanket. Even if Dad doesn’t beat this thing in the end, at least he made it far enough to look back and know he lived a long and satisfying life.

Today, at fifty, this notion seems ridiculous. My father was not old then, just as I am not old now. Not nearly old enough to die willingly, anyway, or to feel as though everything that needed accomplishing had been accomplished. Continue Reading…

cancer, death, Guest Posts

Foxholy

April 9, 2015

beauty-hunting-jen-logo-black1-300x88By Janet Reich Elsbach.

“Smile, would you please?” said my sister as I came through the door to see if she needed any help. “Jesus loves you.”

There were a number of surprising elements to this interaction, beyond the fact that the room we now both occupied was the bathroom. For one, she might more reasonably have requested that I do a tap dance. My sister was dying of cancer, her beautiful athlete’s body wrecked and wracked, and we were just home from another two days in the hospital, where as usual she had questioned and refused 98% of what was on offer, where as usual the doctors and nurses had glared at me reproachfully behind her back, and where as usual I had done a non-stop theater-in-the-round cabaret of advocacy and placation for 48 hours. Maybe I had slept for two of those hours, and not in a row. So of all facial expressions, a smile seemed farthest from my reach.

For another thing, we’re Jews.

“He does, you know,” D. continued as I attended to her. “Don’t you know that?”

Once I became old enough to really put some muscle into talking back to her, some time in my teens or twenties, I pointed out that a large percentage of what she said to me (and to others, to be fair) ended with an audible or implied, “you don’t, do you?” As in, “do you know you’re supposed to put X on Y in that order, rotate your whatsits seasonally, never accept domestic yah-yah and ONLY buy organic hmm?” Here she would pause for a second to see if there was a flicker of agreement, then sigh or even snort a little when it failed to appear. “You don’t, do you?” Eventually the sniff or sigh could stand in for the four-word codicil. Sometimes I would say it for her.

Cancer had intensified her dissatisfaction with rubes and imbeciles in ways I mostly understood, as well as raised the stakes. As her prospects grew darker and her misery increased, so did the percentage of the population around her who could get nothing right. Since I frequently numbered among them, staying present and supportive was not easy, and with this new Jesus angle, she had managed, yet again, to sling a curve ball that could completely undo me. Having a front-row seat at an epic struggle with mortality, even if it is not your own, can inspire a person to feel around in their toolbox for some connection to a higher power. Over the 18 months of her illness, I hadn’t come up with much.

We aren’t especially Jewish, even though we are Jews. I majored in anthropology, so it’s easy for me to put it that I am culturally Jewish, just not spiritually. Meaning the cuisine, the mannerisms, the sensibility: yes. I like the food well enough and the rest I couldn’t shake if I tried. Bred in the bone. But whatever spirituality I possess, I don’t tune into it on that channel.

When I was little, we were high-holy-day Jews. We had a seder at Passover, and some excellent little hamentaschen from William Greenberg’s on Third Avenue at Purim. A menorah was lit at Chanukah, but the house saw a little Christmas action, too. Barring a funeral, wedding or someone else’s mitzvah (bar or bat), the only time we went to temple was on Rosh Hashana and Yom Kippur; on all these occasions everyone around me knew the prayers in Hebrew and I did not.

Our house was generally a mood tinder-box at the holidays, our parents reverential one moment and irritated the next, apparently with us for not taking it seriously enough. I liked to please them, but I didn’t have much to invest since my sisters and I had never gone to religious school. So I would feel guilty and anxious, as well as excluded and confused, and all in all it was not a pleasant base from which to grow a faith. For a long time I connected my not feeling Jewish to this history, and I bet my parents did, too.

Finally I asked my mother why they never sent us to Hebrew school, if their faith was strong enough to twist and bind them with what had seemed like anger when I was smaller than they were, but I now recognized as guilt. By then I was in college, and they had become more obviously and contentedly Jewish: studying, actively identifying as Jewish philanthropists, lighting Sabbath candles, and I had become more confused about where the faith I felt was rooted. I could tell I had some but I also knew it wasn’t found, or fueled, in a building or book that I had yet encountered.

“We didn’t want to force it on you,” she said. “We had taken a big leap getting a place in the country, and at the time I felt more sure that getting out of the city would be good for you three than I did about Hebrew school. And we couldn’t do both.” I scoffed a little when she told me this, but now that I am a parent I can see completely how a person could arrive at that kind of inconclusive conclusion as the rush of life came at them. Punt! I can’t say that I’ve done much better myself, for my own three.

Around this time I was in the habit of spending a weekend in New Orleans every spring, at Jazz Fest, with D. One of the notable features of that densely packed weekend is the stream of little parades, the congregation of here or there decked out in team colors, waving flags and belting out gospel songs at the top of their impressive and collective lungs. “You kind of need Jesus for that,” I remember saying to her. Judaism, Buddhism, anything else I could think of—none of these other belief systems really loaned themselves to this kind of ecstatic, toe-tapping spectacle of testament. It was enviable, to me—that pure devotion and utter certainty and frank enjoyment that characterized their faith. Jesus had a plan, and come what may, that was the raft they set sail on and clung to in a tempest. It seemed as comforting and appealing as it was out of reach.

I was amazed that my sister had found that raft. Both my sisters had certainly gravitated more resolutely towards Judaism over the years than I had, and I’d had many occasions to wonder how it had all skipped me as they both spoke knowledgeably and comfortably about things that felt utterly foreign, even alienating to me. D.’s son even had his bar mitzvah, a first (and only) in our family for generations. And I also knew that D. was pretty open, as a seeker. Around her house you could find a little altar to Ganesh and a portrait of Lakshmi as well as a mezuzah, some Buddhist prayer beads, giant crystals from Arizona and an Islamic knot. But Jesus, now. That was new. Continue Reading…

cancer, death, Guest Posts

On Blue Skies and Loss.

March 14, 2015

beauty-hunting-jen-logo-black1-300x88By Chelsea Nolan.

It was winter when he called me. We talked daily so it was no surprise, but this time it was different. He said he had something to talk to me about but he wanted to do it in person this weekend. I was with my two best friends who didn’t know what to say. But I knew.

It was cancer again. I knew it the second I heard the sound of his voice, the way he told me everything was okay with a soft edge to his words. It was cancer, it was worse this time and everything was about to change.

He was diagnosed on February 10th and he told me on Valentine’s Day. Even though it was six weeks before, I consider that the day I lost my dad in so many ways. The father who carried my bags out to my car, bought me groceries, repaired holes in the wall, changed my oil, asked me about dates I was going on. The dad who would drop everything if I asked him to, let me beat him in chess even though he was so much better. The dad who took care of me. The dad who gave everything he had for everything I was going to be. From that day on it was me who took care of him.

Jen Pastiloff is the founder of The Manifest-Station. Join her in Tuscany for her annual Manifestation Retreat. Click the Tuscan hills above. No yoga experience required. Only requirement: Just be a human being. Yoga + Writing + Connection. We go deep. Bring an open heart and a sense of humor- that's it! Summer or Fall 2015. It is LIFE CHANGING!

Jen Pastiloff is the founder of The Manifest-Station. Join her in Tuscany for her annual Manifestation Retreat. Click the Tuscan hills above. No yoga experience required. Only requirement: Just be a human being. Yoga + Writing + Connection. We go deep. Bring an open heart and a sense of humor- that’s it! Summer or Fall 2015. It is LIFE CHANGING!

Continue Reading…