Browsing Tag

death

Guest Posts, Grief, healing, The Aleksander Fund

To My Sweet Baby Girl, After Her Death.

October 31, 2017

 

By Dannielle Gallagher

CW: This post discusses infant death. To learn more about The Aleksander Fund or to donate please click here.

To my Sweet Baby Girl, Poppy:

The minute I discovered I was pregnant I knew you were girl, just like I knew we would be the best of friends – that is after you outgrew some of that fire you inherited from your Daddy. I knew I loved you more than I ever thought possible, all before you were the size of a pea. I knew that you would grow to be brave and strong and determined. I knew that you would grow to also “know” things in that same deep down way that I sometimes do. I felt that about us, that we belonged to each other, right from the very start.

 

What I didn’t know, was as you grew inside my belly (and my heart) you were sick. You see as you were growing, your tiny heart didn’t form quite right. There was a little valve inside it that wouldn’t close, so as you grew from a tiny seed into our beautiful little Poppy, your heart became too large to fit into your chest, it expanded to squash the organs that would make it possible for you to ever take a breath. Your official diagnosis took up most of a page, it started with your heart, compounded with a series of devastating complications, and ended with three serious looking specialists in an ultrasound room, telling us that your condition was “not compatible with life.” Those words will haunt me, always. The moment I learned that I wouldn’t get to watch you grow into the extraordinary woman I dreamed of, was excruciating. It was also only just the beginning of my heartache. Your diagnosis also came with a recommendation of medical termination.

I won’t say I didn’t have a choice, because I did, but ultimately every option I was presented with still ended in your death. So I picked the option that sucked the least, the one that I thought I could best live with. I made the decision to love you enough to let you go in peace, surrounded by those who love you most in this world. It wasn’t a choice I wanted to make, but I made it, because sometimes being a Mother means doing what is best for your child, even though it breaks your heart to do it. I want you to know that If I could have chosen to have you live a healthy and full life, I would have given everything to give you that. Its devastating to know that even with all of the medical miracles we have in this day and age, there wasn’t a miracle big enough to save you.

Continue Reading…

Guest Posts, suicide

Mental Illness is a Terminal Disease

October 8, 2017
suicide

CW: This essay discusses suicide. If you or someone you know needs immediate help, please call 911. You can also call the National Suicide Prevention Lifeline at: 1-800-273-TALK (8255) or contact the Crisis Text Line by texting CONNECT to 74174. The world need you.

By Kellie Julia

The picture above is of three of my most favorite people, 2 are gone. My gram died at 93 of natural causes. My son died at 31 and there was nothing natural about it.

I gave my son’s phone away this week to someone who really needed it. It seems like an easy enough thing to do but I cried for hours after. I saved the last text message I had from him which said “I love you too”, that was 5 days before he put a gun to his head and pulled the trigger. That was 5 months ago.

I still wonder what would have happened if I had gotten to his house 5 hours earlier than I did, what if I would have begged him to please hold on just one more day. No matter what I did or said for many years I could not take his pain away. Believe me, I tried. Do I find comfort in knowing that he is free of pain, yes. Would I rather have him still in pain but here with me instead, yes. Do I feel that is selfish of me, yes. Many suicidal people believe that the world would be a better place without them. Is it? No! Mental illness is a terminal disease and it should be treated that way. Continue Reading…

Guest Posts, Grief

The Sacred Silence of Visiting the Dying

August 23, 2017
hospice

By Larry Patten

Before meeting my new patient, I admired her Ford Mustang. The snazzy red convertible was parked on the street, by her brother’s driveway.

The license plate frame declared: Fly Away!

While unsure if it was her car on that first visit, the frame’s message represented a solid clue. I knew she was a forty-something flight attendant.

This was years ago when I worked as a hospice chaplain and spent considerable time driving to see my patients. Most of them resided in their home or with a family member. I probably visited the red Mustang’s owner on a half-dozen occasions. From our first awkward handshake to the final moments beside her hospital bed in her brother’s living room, our patient-chaplain relationship deepened. She learned to trust me. I certainly learned from her as she continued living and loving while cancer wrecked her body. Even at my last visit, her short gray-blonde hair was stylish. Her make-up, aided by her sister-in-law, was impeccable.

The red Mustang’s owner never spoke a word to me.

The cancer, seemingly everywhere by the end, had started in her throat. Long before entering hospice, she’d lost the ability to speak.

***

Nowadays, I spend hours at a different hospice on the phone. According to my lengthy title, I’m a Bereavement Support Specialist, involved in what other staff and volunteers in other hospices do: contacting family and friends after a loved one’s death. Part of a hospice’s mandated requirement is to support the grieving.

I make a bunch of calls every week.

When someone answers, I try to gauge how she or he is doing and make sure they know about our additional resources for grief support. On the phone, long minutes pass with me only muttering, “I see” or “Really.” I want them to know I’m paying attention, but don’t want to interrupt their stories, questions, or worries. Most calls are brief. A few of the hundreds of calls made every month cause me to feel that what I shared, or how I listened, helped someone find a smidgen of hope in their day.

Long ago, my parents said I had “the gift of gab.” By background I am a pastor and spent years preaching, striving to capture people’s attention for at least a portion of a twenty-minute sermon. In the churches I served, there was also endless phoning: cajoling folks to serve on committees, work with the youth, or teach Sunday school. So many phone calls, so many opportunities!

Though no longer preaching, I’m still talking.

I press the numbers on a phone and reach out to another wounded, fragile person. After asking if this is a good time for a chat, I fulfill the Medicare guidelines to comfort the grieving.

***

The red Mustang’s owner never said a word.

Our first encounter was awkward with a capital A. I was a stranger, the guy from hospice. I babbled. I struggled to find questions that allowed her to shake her head “No” or nod a “Yes.” Her doting brother, who’d convinced her to move in with his family when the disease made living alone impossible, hovered in the background. He didn’t want some fool of a chaplain to upset her. This was his little sister and only sibling. Her dying would crush him.

With each visit, I babbled less and posed easier questions.

We prayed.

We held hands.

We made lots of eye contact. There were stretches of silence. Initially, it felt uncomfortable. Eventually, the silence felt sacred.

She had a million dollar smile. She forgave my mistakes and fumbling questions. She never saw my tears . . . though after leaving, passing by her red convertible as it gathered more dust every week, I would weep.

She died less than two months after our first visit. Her brother buried her ashes in a cemetery with a view of the Pacific. “She loved the ocean more than flying,” he once said to me.

***

Professionally, I understand the value of words. Even a simple Uh-huh contains the power to gently remind a person that I am still listening to her or him.

But I also know silence’s power: touch, eye contact, shared smiles.

Some dread spending time with a loved one who is dying or grieving because they don’t know what to say. So I say, say nothing.

Enter the room. Enter into their day and let them know by a caress, a nod, a grin, or a tear, that you are there.

And so are they.

Larry Patten is a writer, a United Methodist minister and currently serves as a Bereavement Support Specialist at a hospice in Fresno, California. Larry has participated in the Squaw Valley Community of Writers, and is published locally in The Fresno Bee) as well as in national magazines like Spirituality and Health and The Christian Century. He can be found online at www.larrypatten.com (musings about faith) and www.hospice-matters.com (thoughts on dying, death, and grief).

Join The Manifestation Retreat: Manifesting Under The Tuscan Sun. Sep 30-October 7, 2017.. Email retreats@jenniferpastiloff.com or click the picture above.

 

 

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Donate to the Aleksander Fund today. Click the photo read about Julia, who lost her baby, and what the fund is.

Guest Posts, Grief, healing

Over and Over

July 5, 2017
fishing

By Jessica Knuth

There is an unexpected sense of loneliness in watching the dead body of someone you love being taken away from your home. Alone in the back of a car. Zipped up inside a body bag. Driving away into resounding blackness.

Somehow, in your delirium, through the tears and snot, through the sharp pains in your chest and loved ones touching your shoulders, your hair, somehow you manage to walk down the hallway where your Dad should be sleeping, where he has slept your entire life, and you look inside his bedroom, though you know you shouldn’t. The bed is unmade, sheets jumbled and repositioned in haste. There is a stain on the bed and you can’t tell if it’s blood, or urine, or vomit. Otherwise, the room is the same as it was two hours earlier when he was still alive. When his lungs still worked. His heart, his brain, however limited. Before he went from present tense to past tense. Animate to inanimate. Living to dead. Continue Reading…

Guest Posts, Grief

Ghosts And The Perfect Puddle Dive

June 4, 2017

By Debra Feiner-Coddington

Inspired by Edna St Vincent Milay’s, What lips my lips have kissed, and where, and why (Sonnet XLIII) 

“… but the rain
Is full of ghosts tonight, that tap and sigh
Upon the glass and listen for reply,
And in my heart there stirs a quiet pain…”

Part I – My World is Full of Ghosts Tonight…

Our house is getting a new room. Built to make our lives easier, it will stand in front of the old glass double doors dented and scratched by 30 years of assorted cats and dogs.  A portico is what I thought it was called but recently learned it is a vestibule – if one cared about accuracy in names – because it will be enclosed when it’s completed.  A portico would be open sided.  Built to collect pebbles and mud from our boots before we enter our house. Built to hold the mess scattered through our lives and our kitchen: shoes, coats, hats, containers overly full of recycling.  Built to make our lives easier, our home is getting a new room.

Made of wide glass panels, its roof is open and light.  Lovely. My husband built it from galvanized steel sheet he carefully measured, cut, laid and folded to fit glass inlaid with chicken wire, like the glass protecting hallways in the little apartment house in the Bronx where I grew up. The first project he’s done for himself in 25 years, he stands under it looking up through the wired-glass at the threatening clouds. Under the safety of his new roof, arms folded across his chest he surveys his work and radiates satisfaction. His chest rumbles, “Hooommmmme.” It is his home. The home he opened to me so generously when we met 40 years ago. The home that grew our business, our children, our lives. Continue Reading…

Guest Posts, Grief

The Exploring Heart

April 30, 2017

By Debra Feiner-Coddington

Sometimes in the middle of my nights when everyone else is sleeping the beautiful things happen. In those quiet hours they always have. Nocturnal now, nocturnal forever, I pass as a day dweller because I don’t need much sleep. While everyone else breathes into their night I prowl through my house, my home, and find the simple things I miss during the hours when the sun shines and I’m too distracted to notice them. Too busy. At night when I am alone listening to the little noises: snores, the creaking of our wooden house responding to the change in the weather, I find them, little treasures waiting to be found; seen. With no distractions I become Ponce de Leon, Magellan. And my home is where I unearth discoveries.  The rippling glass of a jar holding trailmix on the counter; very old, my son Baylin unearthed it cleaning out the ramshackle mess of a storage shack. An apothecary jar. Mouth blown and hand made. The uneven glass makes me dream about whose hands made it, what they looked like, what’s been stored in it over the course of its life. What it can tell about its life before, and the stories about us it holds for the next pair of hands to fill it.

Baylin never seemed to care much about the trail mix I made for his dad who thrives on nuts and berries. But when it was time for his cross country drive to Burning Man, his last ever road trip Baylin asked, “Ma, do you mind if I take the trail mix with me?” Mind? Oh dear. Even then, when I thought he’d remain with us, when I thought we’d watch him marry and give us grandchildren, even then I was tickled that he liked my trail mix enough to want to take it on the road to feed him as he traveled. What mother complains about their children loving the food they prepare no matter how simple? Even trail mix. “Mind? No Baylin. Take it with you. I don’t mind.” Continue Reading…

Guest Posts, death

Silent Witnesses: A Night at the Morgue

April 26, 2017
chair

By Nina B. Lichtenstein

There is a beautiful and ancient Jewish tradition of reciting Psalms while watching over a deceased person until burial. A few of us had decided to take turns sitting with our friend Philip’s body overnight. Philip was a handicapped man in our synagogue who was loved and admired by all. When Philip recently died, his death, as his life, brought some unexpected gifts for those close to him.

It was almost 12:30am and the air was thick with the humidity of balmy summer nights. After an eternity of banging on all the windows and doors of the seemingly empty funeral home, which also functioned as the Jewish morgue in town, I suddenly saw lights turn on inside. The door swung open and out stepped a bushy-bearded and bespectacled man with a sweatshirt hood covering his head. Not young, not old, wearing a pair of baggie, well worn, beige Dickies, he stood tall, like me, and cocked his head slightly to one side. Standing in the dim light, he said, “Yes? How can I help you?” gazing quizzically at me from under a knit hat, the kind fishermen wear. It was pulled down on his forehead, resting on a set of overgrown, gray eyebrows. He didn’t’ exactly look your clean cut funeral-home guy, but instead more like a version of the troubled poet John Berryman, or worse, Charles Manson. He was the night guard, or the shomer.  Continue Reading…

Guest Posts, Addiction, No Bullshit Motherhood, Surviving

To The Girl Whose Mom Just Died From Drugs: It’s Not Your Fault

January 11, 2017
drugs

By Lisa Fogarty

Before you watched her unravel, bit by bit for all 17 years you’ve been on Earth; before she pulled the plugs on people and places until there was just an empty room and her in it; and long before she died from the complications of a debilitating drug addiction, your mother was a little girl with skinny legs and a laugh like a solar eclipse.

We were friends, but more like cousins. She’d sit on her twin bed cross-legged and stare into my eyes with feline expectation. She wasn’t another aloof victim of my generation’s casual contempt for everything. She was a mental vagabond who once got homesick after a weekend away, which should have been our first clue that this world would never give her what she needed. She was too thirsty to be happy, but had a fat laugh that stayed nourished throughout her life-long drought, a laugh independent of joy and one that made the entire room quake with the force of her freedom.

Before she saw too much, your mother was almost infuriatingly naive at times, hiding cigarette butts and cheap trinkets from boys in an Aldo’s shoebox beneath her bed. She stashed dollar bills in there, too, and no matter how desperate she was to split a $4 calzone from the pizzeria on Lefferts Boulevard, she’d let us both starve before touching the money she was saving to buy a Ferrari. On the weekends I slept over we watched Friday Night Videos and I made fun of her for shushing me when sappy songs came on. One Saturday afternoon in October we got caught in a rainstorm. She was 14 and failing math class. “Let’s stay out!” she shouted with a laugh that had grown threatening enough to challenge the sky. We roamed through the neighborhood like stray cats, sticking our heads under drainpipes. She had a way of making you feel like there was no better way to spend your last day on Earth than washing your hair in cold rain. Continue Reading…

Guest Posts, Current Events, Hope

My Idols Are Dead and My Enemies are In Power

January 1, 2017
idols

By Meghan O’Dea

Two days after Christmas a fellow author posted to Facebook an image of unknown origin I had seen before. A pale hand, female, dangles a thing white cigarette between calves wrapped in black pantyhose, bent at an insouciant angle. The smoke from the cigarette wraps around the subject’s right hand, a gold band around her middle finger. Below a caption, in a yellowy sans-serif font, introduced by a hypen like a subtitle or Emily Dickinson poem, the quote at a tense angle. It reads: “— My idols are dead and my enemies are in power.”

It was, coincidentally, the same day that Carrie Fisher died. My friend, the author, posted the photo before the news broke that Fisher’s heart attack some days before had resulted in her passing. But it summed up well a year in which so many idols died, from those of my childhood (Richard Adams) to those who inspired my teen idols (David Bowie) to those I had little sense of connection or references to (George Michael). The image appeared four days after I showed up at my parents’ house with a suitcase, face still puffy from crying over the end of a relationship I had thought would end in marriage.

Around the time that I had been dreamily listing out the songs I would like to make up the soundtrack to my wedding, Leonard Cohen passed away. At the time, Cohen’s was one more in a procession of celebrity deaths and personal losses that had marked the almost two years I had been with my former partner, a series of blows that took a subtle, steady toll on a new love. The much-beloved cat, hit by a passing car. The friendships faded and fraught, just when they seemed the most needed. My mother’s mid-life crisis, set off the previous summer when I had spent three months at my grandfather’s house and unwittingly stepped into a tight woven trap of family tensions. The mounting pressure and humidity of the political climate, like the Tennessee summers of my childhood just before a storm comes screaming in off the plateau.

Despite living my whole life in the South, I had never seen so many Confederate flags as I had that summer in western New York, so close to Canada I had brought my passport along in my bag. The stars and bars lined the porches and truck bumpers in that sleepy Rust Belt town for weeks after Dylann Roof’s massacre in Charleston. In hindsight it’s hard not to imagine they heralded Trump’s victory, the coming appointments of Steve Bannon and Jeff Sessions.

It had been so strange to explore a brief, unfamiliar sense of romantic happiness in the midst of what often seemed like the world falling down around our ears. But there were those before us who had survived equal or greater tumult. The very elders who were dropping like flies were a testament to what had changed and what had endured since before we were born.

Cohen had been first introduced to me by another former lover, who had played me “Anthem” in a moment of crisis, and unwittingly given me several minutes of of balm to the inevitable heartbreak. There is a crack in everything. That’s where the light gets in. As I drove to the gym after hearing of Fisher’s passing, the strains of Cohen’s baritone drifted by chance out of the local radio tower, through the speakers, and soaked into the worn upholstery. Everybody knows the good guys lost. Everybody knows the fight was fixed. The poor stay poor, the rich get rich.

In a year of endless losses, the partnership in which I’d sought solace became one more unexpected casualty. There was the subtle toll my mental health had taken on my lover’s, the way my history seeped into our present. There are, as Cohen and Fisher and so many others know so well know, cracks and fissures that may let light enter, but which even love cannot fill or heal.

The day after Christmas, the night before Carrie Fisher died, I watched one of my very favorite movies, Meet Me In St. Louis, for the umpteenth time. After I fell down a rabbit hole of re-reading articles and essays on Judy Garland’s life, along with the inevitable mention of the scandals that she felt defined her.

Then the news broke that Fisher had died, and in a way it was all so beautiful in its synchronicity: the timing of finding myself attuned to the parallels and lessons of these two extraordinary women’s lives. They each lived through mental illness, weight fluctuations, disappointments in love, the pressures of their professions, and the burden of existing in a system that was not made for or kind to them.

There are the women you want to be— the women you idolize and wish you could inhabit. And then there are women like Garland and Fisher, whose lives are not exactly enviable, but who have shown that life does not have to look any particular way to be considered a success. Moods shift, bodies fluctuate, lovers come and go, careers rise and fall, times change. It is art, intelligence, and sheer presence that endure. There are the women you learn from.

It was a year that tore us down, and stripped so much away. The year that has become infamous in the lore of internet memes and obituary sections. Yet so many of our fallen idols left behind last works of startling beauty and darkness and celebration. Fisher revisited her younger self in The Princess Diariest from the perspective of one who views youth as something to survive, not maintain. Bowie spoke of resurrection on Blackstar. And Cohen left us with an accusation, a dare, in the title of his final album: You Want It Darker. Perhaps I did. Perhaps we all did, and that is why the world is in the state that it is in. Perhaps this is simply a season we must walk through.

My idols are dead. My enemies are in power. The man I thought I would marry did indeed, in the words of Cohen, dance me to the end of our love. And yet I stand here hopeful. There will always be lovers and enemies, work and slow songs, black nights and bright ribbons. These things unfold endlessly around that which is both ephemeral and enduring, that which is ceaselessly reborn. In the face of all this loss, I am writing again. It is here and now, when so much has faded and changed, when I feel the most certain and strong. I have learned that in the middle of the darkness and tumult, we will always have ourselves.

Meghan O’Dea is a writer and editor who just completed a masters in Creative Nonfiction at the University of Tennessee at Chattanooga. She writes primarily on space and place and the meaning of home. On the weekends she is the homepage editor for Fortune Magazine. She has been published in Washington Post, Fortune, Huffington Post, Hello Giggles, ink&coda, and has an essay forthcoming in The Rumpus.

What’s Jen Pastiloff’s workshop all about anyway? It’s about being human. Connecting. Finding your voice. Not being an asshole. Singing out loud. Sharing your fears. Bearing witness. Telling your fears to fuck off & fly. Listening. Moving your body. Laughing. Crying. Finding comfort. Offering comfort. Letting go. Creating.
Next one after this is NYC Feb 4 at Pure Yoga West. You don’t need to be a yogi at all. Just be a human. Click photo to book.

 

Join The Manifestation Retreat: Manifesting Under The Tuscan Sun. June 17-24 OR Sep 9-16. Email retreats@jenniferpastiloff.com or click the picture above.

Guest Posts, Grief

From the Body to the Cosmos: Notes on Grief and Love

December 29, 2016
death

By Lillian Ann Slugocki

Here’s the truth about grief:

You are crazy, and nothing is real, and this is true for a long, long time.

When that passes, the hard work begins. You have to completely rebuild your relationship with the newly dead. It doesn’t just go away. The love is still there. The love that aches for connection at any cost has to be dealt with in some form or fashion. This is the hardest part. When you are no longer sobbing on the bathroom floor, or drinking a bottle of wine in the middle of the day, when you are no longer crazy, and you have a modicum of control– then it’s time to sift through the wreckage. And this is hard, stupefying work. Now, Mark, is my brother, even though he is dead. I still talk to him about his daughter, and his granddaughter, and what I’m doing with my life.  All of the other, painful shit has fallen away; the anger, the addiction, the dying days. And what has remained is my friend. Love never dies. Energy can neither be created nor destroyed, but it can change shape. Death is the ultimate shape shifter. Out of the body and into the cosmos. Continue Reading…