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joules evans

cancer, Fear, Gratitude, Guest Posts, Heroes

Masks

October 31, 2015

By Joules Evans

It was the best of times. It was the worst of times. This is a tale of two masks, this mane and this zebra pencil. It’s a comedy about a tragedy. One of my own doing.

But first, a tale of two sons.

Act 1: Matt. Matt has always liked (and still likes) to dress up as his heroes and supmatt3erheroes. Davy Crockett. Indiana Jones. Andy (from Toy Story). Mario. Siracha hot sauce. Spidermat, I mean, Spiderman. The thing about masks is they hide our true identity. When Matt puts on his Spidey mask HE IS SPIDERMAN. Matt is underneath, but hidden. It’s a pretty epic mystery. Like how nobody spies Superman underneath Clark Kent’s glasses. But the other thing about masks is they can also reveal. When Matt puts on his Spidey mask he is revealing something about himself.  Inside, he is a superhero. In his own way, he is and has always been out to save the day, save the girl, save the world. In a sense, in essence, HE IS SPIDERMAN. Even without a mask. And he has been all his life. Once when he was 5 or 6, we were at his little brother’s baseball game and it started raining. My little superhero took off his mask, in this case the shirt off his back (but to me it was a superhero’s cape) and put it on the bleachers for me to sit on so I could stay dry.

Act 2: Mikeyy. Not surprisingly Mikeyy followed in his big brother’s steps as far as dressing up as mikey1superheroes. Superman. Michael Jordan. Michaelangelo. Daniel Boone to Matt’s Davy Crockett. Buzz Lightyear to Matt’s Andy. Luigi to Matt’s Mario. Batman to Matt’s Spiderman. One thing that was revealed early about Mikeyy was that he is and always has been a peacemaker. And later, when he sometimes ended up dressing up as the bad guys because all the good guys were all, already taken by everybody else, it revealed something else about him. Like when he dressed up as Voldemort for the midnight premiere of the final Harry Potter movie. Mikeyy shaved his head AND HIS EYEBROWS. What it revealed about Mikeyy is commitment to the nines. He was Voldemort that night. Not only did he win best costume, but everybody in the theatre wanted their picture with him. What it hid was this mama’s utter shock at seeing my baby boy bald all the way down to his eyebrows, since I’d just grown mine back from fighting cancer. It was like looking in a mirror. Like I was seeing my own reflection, back in time.

Act 3: It’s just hair. That’s what I tried to tell myself when I found out I had breast cancer and that the chemo was going to be an ultimate wardrobe malfunction and make my hair fall out. #tbt to August 20, 2008. THE superpowerinciting incident of all inciting incidents in my life, in which this mask was lifted. My cancer… (yes, mine. I own it; it does NOT own me. Or define me. But it is part of my story. My story. Continue Reading…

cancer, Dear Life., Guest Posts

Dear Life: How Do I Knock Down The Walls Cancer Has Built Around Me?

November 9, 2014

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By Joules Evans.

Welcome to Dear Life: An Unconventional Advice Column. Your questions get sent to various authors from around the world to answer. Different writers offer their input when it comes to navigating through life’s messiness. We are “making messy okay.” Today’s question is answered by Joules Evans, author of Shaken, Not Stirred. A Chemo Cocktail.

Have a question for us? Need some guidance? Click here. Please address it as if you are speaking to a person rather than life or the universe. Need help navigating through life’s messiness? Write to us!

 

Dear Life,

I’m 32 now – 30 & 31 were filled with having double mastectomy, painful reconstruction, chemo and radiation. I’m starting heal my mind, to get back into the swing of life and letting myself look at possibilities I haven’t in years – seizing the day, romantic possibilities.

I like a boy – it’s crazy, it’s been a long time. How do I knock these fucking walls down and start acknowledging I do deserve something great in my life. My body is literally what is left of a battlefield. I look at myself in the mirror and feel so broken and impossible to love. I worry so much I will open up to this guy I will be completely and utterly rejected.. and even more broken than I started out. Help.

Love & light,
BC Survivor

Continue Reading…

Beating Fear with a Stick, cancer, courage, Free Stuff, Guest Posts

Cancer Is a Bitch. But Wait! There’s Good News Too.

August 21, 2014

Shaken Not Stirred: A Chemo Cocktail. A Comedy About My Tragedy. By Joules Evans. (hint: good news follows.)

Hi beloveds, Jen Pastiloff here. I’m the founder of The Manifest-Station. There’s a lot going on here with us trying to get the new site launched (eek! Thanks Carla White) but…it is very important to me that I get this post up asap as my dear friend Joules Evans wrote it. I met Joules when she drove from Ohio to Massachusetts to attend my Kripalu retreat last February.  (Yes, I am doing it again and it’s filling up fast!) Anyway, we have become buds, and, truth be told, I am obsessed with her and her book Shaken Not Stirred.. A Chemo Cocktail. The kindle version is FREE TODAY and tomorrow to celebrate 6 years aka 2190 fucking awesome days since hearing that damn word. each and every one a GIFT. even the hard ones.<< Joules words. That is the good news. To celebrate she made her book free for two days. Please get it and take the time to read what is below. Have your mind blown. Seriously guys, her book is moving and funny and divine.  I love this woman to the end of the earth and back. This post is an excerpt of her book. Please get it. And get it for people. And spread the word. And fuck cancer!

Continue Reading…

Beating Fear with a Stick, beauty, Books, cancer, courage, funny, Guest Posts, healing

Shit Happens. To Everybody.

February 13, 2014

My Road Trip to Kripalu by Joules Evans.

A few months ago I was up late counting sheep, when some shit I’d been dealing with must’ve hit the ceiling fan over my bed and started splatting all over the sheep, spotting them like 101 Dalmatians. Which kinda felt like a spoiler alert to the sleeping game I was trying to win. So I stopped counting shitty sheep and I prayed a little. Which is probably what I should’ve been doing about my shit in the first place instead of kicking it around a bit, and then, kicking myself for making such a mess. I’m assuming we all know how messy metaphorical shit can get when you kick it around. Now, I know I’m not supposed to go assuming, but I figure it’s legit in this case, since there’s no such thing as a shit vaccine. I don’t think there is a sequel or grown-up version of the children’s book, Everyone Poops. But I could see it being called something like, Everybody is Full of Shit. Well, at least, I know I am, on a pretty “regular” basis.

Anyway, after all of that ruckus I sort of pulled it together a bit. I wasn’t in the mood to go back to counting sheep quite yet so I woke up my computer, and Googled: “yoga, writing, cancer, retreat” to see where it would lead. Yeah, that third word is some of the shit I was dealing with. The first two are a couple of ways I try to deal. And the last word sounded like a good thing to do when you’re up to your sleepy eyeballs dealing with your own shit.

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poster by Jen’s friend Karen Salmansohn. Click to connect with Karen.

Google threw down an article Jen wrote for LIVESTRONG called “7 Reasons To Go On A Yoga Retreat”.  No shit.  This was my introduction Jen Pastiloff and her Manifestation Retreats. It didn’t take me long, after falling head over heels into the lovely vortex that is Jen’s tribe, from the Gateway of that LIVESTRONG article, to Facebook stalking her, and then staying up all night watching her YouTube channel, to realize (become enlightened;) that Manifesting is aka Making Shit Happen, in Jen speak. Which, translated, meant that of course I had to go. I hadn’t tried manifesting my shit before so I thought I’d give it a “swirly”.

I’d already practically nodded my head off, agreeing with her 7 reasons I should go on a yoga retreat. As if, in fact, my body was, literally, saying YES. So I booked the next available Manifestation retreat, which meant packing up my shit for a road-trip to Kripalu in January. I don’t usually buy gifts for myself but this was a gift I needed to give myself. I saw it as the perfect diving board into 2014—a gift, which, 5 years ago when I was diagnosed with cancer, I never even imagined. It was time to re-imagine, cast a vision, set course, and dive in. Head first. No tiptoeing about it.

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When I first walked in the door, I had a pretty intense moment of truth. I didn’t know anybody. And, I’m actually super shy. Luckily I have blue hair, so I don’t think anybody noticed my knees shaking like green Jell-O when I walked across the room like Gumby and plopped down to join the tribe 40 women sitting in a circle, like lotuses blooming. As bold a display as it was a beautiful bouquet.

“If you knew who walked beside you at all times on this path which you have chosen, you would never experience fear or doubt.” Jen kept repeating this quote as we went around the circle introducing ourselves to one another. Over the weekend we got to know who walked beside us. We unrolled our mats, unpacked our shit, turned it on its smelly ear in down dog, wrote down the bones, made them dance, shared our stories and our dreams, tore up our excuses, became friends, and each other’s fans. We spent the weekend as beauty hunters, making lists and lists of our #5mostbeautifulthings. This is one of the most. fun. games. EVER. We shared our beautiful things, but we also shared our shit—because love is messy like that sometimes, but that doesn’t make it any less beautiful.

Shit happens. To everybody.  Except when you’re constipated. And then you just sit on the toilet reading Leaves of Grass for what feels like forever; meanwhile shit’s just taking its own sweet time while you’re sitting there waiting for the shit to go down. Oh, shit’s gonna go down. And sometimes it’s going to hit the fan.

Shit happens. But so does beauty, and what if it hits the fan? Does it leave a beauty mark or make a beautiful mess? Sometimes you get dealt a shitty hand but sometimes you double down or play a wildcard and beat the dealer. Sometimes you’re up shit creek but at least you’re on a boat. You may not have a paddle, but at least you’re sipping red wine in your flippie-floppies with your girls on deck. Anything is possible. Even making good shit happen. Which is pretty much what a Manifestation Retreat, what Jen Pastiloff, is all about.

Post road trip to Kripalu, I’d have to say, that the shit that drove me there, and the beauty I came away with, are two sides of the same coin. I put so much pressure on myself to not waste this gift of life, but to hopefully leave a beauty mark—that I was here. This is what keeps me up in the middle of the night. I put so much pressure on myself not to waste a second of the gift of time that I’ve been given, but to spend myself, paying forward the gratitude I feel all the way down to my yoga toes—by making it count that I was here. This is what keeps me up in the middle of the night. I don’t ever want to take for granted the gift of a single breath, but sometimes I forget to breathe. This is why I drove to Kripalu. I don’t ever want to take for granted the gift of a heart that beats, or forget what it beats for. This is why I drove to Kripalu.

Jen summed it up best when she wrapped up our time together with these words, this mantra: “At the end of your life, when you say one final ‘What have I done?’ let your answer be, I have done love.”

#iamlove

That’s all.

(Except for the part where I express my gratitude to Jen, Kripalu, and the tribe. Peace, love, and namaste. *bows to your unapologetic awesomeness. Xoxo.)

About Joules: I’m a Christ follower. I wear a pink bracelet that says survivor. I think cancer is a bitch. Been there. Done that. Had to buy a new t-shirt. But… I also think God is good. He’s been good to me. I just finished writing a book: SHAKEN NOT STIRRED… A CHEMO COCKTAIL about the cancer chapter in my life. Right now I’m in the midst of editing it and pursuing publication. I’m having the time of my life. I am an INFP. My hub is an INTP (also Buzz Light-year by day.) We have three ridiculous amazing kids who wake up and make me feel blessed. We call them “the Redheads”. After 16 years of homeschooling, we’ve all graduated and I’ve since retired my red pencil and grade-book. Between college, mission trips, internships and world travels, are three all in the process of divebombing out of our cozy little nest aka “the Evanshire” and stretching my apron strings till they snap. Next fall we will singlehandedly be keeping afloat the University of Cincinnati. I love my fam, Vineyard Cincy, writing, red wine, black coffee, good books, cooking, the smells of my hub’s pipe and freshly cut grass, star-gazing (clouds and sunsets too), peanut butter and chocolate, Shakespeare plays, long walks, long talks, playing Scrabble and tennis, popcorn and a movie, traveling, following my Redheads following their dreams…. I don’t like anything besmirching my peanut butter.

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Jennifer Pastiloff is a writer based in Los Angeles. She is the founder of The Manifest-Station. Jen will be leading a retreat to Ojai Calif (where Joules will also be!) over Labor DayAll retreats are a combo of yoga/writing and for ALL levels. Read this post to understand what a Manifestation retreat is. Check out her site jenniferpastiloff.com for all retreat listings and workshops to attend one in a city near you. Jen and bestselling author Emily Rapp will be leading another writing retreat to Vermont in October. A lot. Next up is a workshop in London, England on July 6. Book here.

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