Browsing Tag

prader will syndrome

Guest Posts, motherhood, Self Love

Don’t Should On Yourself.

May 16, 2015

beauty-hunting-jen-logo-black1-300x88By Rachel Pastiloff

I don’t think it is just a “mom” thing or a “woman” thing, although I do think that mothers are susceptible to the “should epidemic.” I know how often I feel that pressure. I recently had, as Oprah would call it, my “a-ha” moment.

What if I let go of all the “should” in my life?

I am a mother, a wife, a health coach, a blogger, a friend, a sister and a daughter. I am no different from you in that many of you out there also juggle wearing different hats. I sometimes find myself at the end of the day saying things to myself like, “I should have gotten more work done,” or “I should have cleaned the house,” or “I should have gotten to the gym,” or “I should have not yelled at the kids this morning.”

The Should List.

I don’t know who writes the should list. I don’t know where it originated. I just know that I am often shackled by this master of all lists that I need to be checking off everyday. I find that the should list leaves me feeling defeated, less than, and often times as if I have failed.

I don’t want to feel like that anymore.

What would my life look like if instead of my should list I celebrated everything as a victory, instead of focusing on the should list that I didn’t accomplish?

I declared yesterday the first day in my victory revel.

I got out of bed, I am magnificent. I got my children out of bed and fed them breakfast. Yes, I am awesome. My kids got to school with clothes on, socks and shoes and underwear that isn’t on backwards. I am a superhero, yes it’s true. I kissed both of my kids goodbye and told them I loved them, I am on fire today.

What if that is all that I did that day? What if that is all that I was capable of accomplishing?

When you see everything as a victory it takes away from all your perceived failures.

I am still a damn good mom, even if at the end of my day I could say that was all I did that day. I can still feel that my day is complete. When I go to sleep tonight I will think to myself, I did such a great job today at what I was able to accomplish, and not feel a sense of shame from what I feel I should have done better. Continue Reading…

Birthday, Guest Posts, Jen Pastiloff, Jen's Musings

It Was All A Dream.

December 16, 2014

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By Jen Pastiloff.

So last night I was waiting to board my flight at JFK.

It was a long day. We (hubby and I) had taken the bus Sunday morning from NYC to New Jersey, after my “birthday that never ends” celebration. I had never done that before- really let myself be loved like that. It was also the first time I traveled that wasn’t work related in ages.

It felt good.

It was the first time my husband came back east with me and met many of my friends and my family and got to see where I was from. We have been married 5 years this coming February and it was the first time he has come back with me, so it was special.

On my actual birthday, I saw one of my dearest friends, Laura Donnelly, shine on Broadway in The River. I sat there and watched someone whose dream was realized- she was onstage in this gorgeous red dress and she sang and I thought,”This is my friend. This is my people.”

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And I teared up. Because, Fuck yeah! She did it!

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I hung out with Hugh Jackman on my birthday. <<< Yea, that’s kind of amazing. I could probably stop this blog with that line. “I hung with Hugh on my birthday.” I sound like an asshole. Don’t be an asshole, Jen.

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Eff that. I shall be an asshole. I hung with Hugh on my birthday. And he is just as lovely as you would imagine. Kind and funny and generous and present and humble.

I’m getting back to the JFK bit, bear with me.

I hung with Hugh Jackman and drank tequila with him and he made a “don’t be an asshole” video with me and then my friends took me to the fanciest dinner I have ever had in my life- 7 courses at Jean-Georges. In true NY fashion, we didn’t start eating until midnight. And there were copious amounts of wine. And dessert.

I spent the following evening at Viceroy New York (thank you for the champagne!) with so many of my beloved friends, some since childhood. And my husband. And my agent came. And I was in NY! My first roommate from NYU came. My friend Tanya (owner of tanya-b clothing line, who organized Saturday’s party and who I am flying out to NYC to do a photo shoot for on Jan 12) gave me a candle with a Biggie Smalls quote on it. It said, “It was all a dream.”

I had the candle in my pocket and I thought, it was all a dream.

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Who’s to say which is the dream and which is real life? I sometimes wonder this.

One time, when I was leading a retreat at Kripalu (were you worried I was going to say, One time, at band camp…?) I was getting a massage and I said to the woman, “I don’t want to go back to real life.” She said, “This is real life. This. Here. Now.”

And I thought about how she was right. Maybe that’s not even what she said. I was in massage-land but she said something to the effect of letting the fantasy part feel “real.” Because me? I always worry that the other shoe is about to drop. This is going to end. I have to go back to real life and real life is bad and messy and painful and something always hurts. This is going to end- I always think that. And yet- it will. It all ends.

But letting go of the idea that just because something good happens to me or for me or I am happy means that something awful is waiting is some straight up bullshit.

I went to bed happy.

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Jen Besser of Putnam Books,.

Jen Besser of Putnam Books.

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10329081_10152408181261114_582759848883491258_nThe next morning Robert and I took the bus to New Jersey so we could drive to Delaware with my mom and visit Benny in the hospital. Those of you new to my page, Benny is a little boy my family and I have fallen in love with, who has Prader Willi Syndrome like my nephew Blaise. He is legally blind and just had a terrible accident that has left him paralyzed. Benny loves princesses.

For my birthday, I knew that the one thing I wanted more than anything was to meet him.

So I made that happen.

We drove to Delaware bearing the gifts (all princess stuff) that people had given us for Benny. People like you who have never met him but have been following his story. Someone brought me a present to my NYC birthday party for Benny. It was the greatest gift. Made me cry. She said she had gone to FAO Shwartz and that she “had no idea princesses were so confusing.” People can be so good when they aren’t being assholes. (Myself included.)

This little boy is such a warrior.

I won’t lie- I have been struggling with understanding why some people have to have so much pain in their lives? This kid has so much with having Prader Willi (google it, it sucks) and being blind. And now, he is fucking paralyzed? I wish I had a greater faith in times like this. I’d say, “Take me!! Take me!” but truly, I am not sure who I would be saying that to. How much can one little boy take??

And then this, in Pakistan this morning as I was posting this blog. All these children. Why? Why? Fists to the sky! Why!

Continue Reading…

Don't Be An Asshole Series, Gratitude, Guest Posts

What Doesn’t Kill You.

December 1, 2014

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By Jen Pastiloff.

I wrote this for Thanksgiving but hey, it’s still close enough to Thanksgiving. It’s “Cyber Monday.” Who the hell uses the word “cyber” anymore, anyway? Happy Cyber Monday! Another reason to shop! This is America!

This was my T-Day post:

Sometimes it’s hard to be grateful. Two of my friends just lost their sisters two days apart, right before Thanksgiving. This little boy, Benny, the one I posted about a few weeks ago (click here to donate), is legally blind, has Prader Willi Syndrome like my nephew Blaise, has had fifteen surgeries on his back, and now, just last month, had an accident that left him paralyzed. Happy Thanksgiving.

Not.

But the thing is, and I mean, this really is the crux of my forthcoming book Beauty Hunting – we must find the good in the bad, we must find the slivers of beauty in the pain, we must find what we have to be grateful for. Otherwise – life is torturous and ugly and mean and filled with pot-holes.

I created this series I’ve written about called “The Don’t Be An Asshole” series or otherwise known as The DBAA Series, whereupon I make fun of myself. I call myself out. I hope to lead by example and remind us all not to take ourselves so seriously, because hey, life sure can suck at times already. Why should we add to that suckiness?

Continue Reading…

Guest Posts, parenting, Special Needs

Before You Judge Me.

October 8, 2014

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By Rachel Pastiloff.

When you are out in the world, be it at a restaurant, grocery shopping, driving in traffic, or at the doctor’s office, and you see a child screaming and a mother losing her cool and grabbing that child by the arm and being stern: BE CAREFUL BEFORE YOU JUDGE THEM.

Be careful placing judgment upon others, for you know not what battles they are fighting.

Before you judge me, or anyone. Take a breath. Consider what you might not know. Look inward. Look outward. Whatever it is, realize this: you may never have any idea of someone else’s story, so judging them is a tricky business.

Continue Reading…

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