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Prader Willi Syndrome

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Angels in Heaven

May 22, 2012

Angels in Heaven.

This is a MUST READ. Please stop what you are ding and read my sister’s latest blog.

I had an incident this week with Blaise ingesting medication, even with the child safety lock on he managed to get the lid off and drink the bottle. My heart stopped and it hit me like a sledge hammer to the head. My child could DIE because he is so hungry he would drink medicine because it tastes good………

Click here to read full blog.

Prader Willi Syndrome

What Do You Do When You Buy 2 Nights at a 5 Star Hotel in Paris By Accident?

May 1, 2012

[youtube=https://www.youtube.com/watch?v=lu3VTngm1F0&ob=av2e]

What do you do?

Have Faith.

You gotta have it.

So says George, at least.

On Saturday I went to a gala for Prader Willi Angels. My nephew has Prader Willi Syndrome, a rare genetic disorder and I pretty much love him more than anyone on the planet, so I thought I would go.

My awesome nephew and buddy Blaise who has Prader Willi Syndrome

Tickets were $150 and all money raised would go toward research. 

I was down.

Plus, I had never been to a proper gala so I was excited.

I’d get to change out of my Lululemon gear? Sweet!

So I get kind of dressed up.

My friend decides to join which I think is amazing because it is $150 after all and that’s not chump change for most. I pick her up and we look super cute together except for the fact that she is about 6 feet tall and I am closer to 5 feet so I look like a Smurf. Otherwise, totally cute. It’s even being at the Jonathan Beach Club in Santa Monica.

Swanky.

My awesome friend Elizabeth aka Cherry who came out to support Prader Willi

First mistake: I get a vodka and soda with my drink ticket. (Yes, I teach yoga. So?)

I should have known when the bartender says, ” Heavy on the vodka? Easy on the soda?”

I thought she was kidding.

She was not kidding.

So, it’s my first gala and all and I don’t really know what the proper etiquette for a gala is  (I mean, what is a gala anyway?) I start looking at the stuff being bid for the silent auction. With my vodka soda in tow.

I ask ” All the money goes towards research, right?”

Answer: Yes.

Second Mistake: I put my sticker 395 down under $30 for a Brazilian blowout in Sherman Oaks which I will probably never use because the valley is like going to New York when you live in Santa Monica.

But hey. It’s for charity.

(Yes, I won it.)

Then I see it: French Kiss it says. Luringly. (This is really the 2nd Mistake but by putting my sticker down on the first thing I got myself in trouble. Downhill from that there Brazilian blowout in the Valley.)

What’s this? I ask as I sip my drink.

Well, well, well.

It’s a 5 star (yes, 5 star) hotel in Paris.

Le Bristol.

A 2 night stay worth $3,500 dollars. (My eyes caught fire when I read that.)

So I took another sip to cool down.

I was going to be in Paris in July after my Italy yoga retreat! Ding ding ding.

3rd Mistake: Yes. I did it. I put my sticker down. Number 395. Lucky Number 395, that is.

A woman was lurking. She wanted the Paris hotel too.

It made me want it more.

(Side note: they had swiped my emergency American Express card when I walked in just in case I bid on anything and won.)

I wanted it now more because this woman wanted it. (I’m telling you, I really am quite yogic. I am not sure what got into me.)

Oh yea, a vodka soda and a little healthy competition.

4th Mistake: She walked away and I put my sticker down. Again.

The auction ended.

Yes, dear reader, you guessed it.

I won.

Ok Jen, I told myself (out loud) You may not have this money. This may be on a card your husband got you for an emergency but it all goes to research and it’s worth $3,500 so really you got quite a deal at $1,560 dollars for 2 nights in Paris. I mean, it’s a steal. It’s like for free!

Jokes aside, I panicked a bit. I really did not have that money to spend but I knew it all went to charity so I just breathed. Loud and hard. But I breathed.

I took a picture of the gift certificate I won to show the Peanut Gallery (aka my husband and mom.)

5th mistake: I take a picture of said certificate and leave it at the flipping Jonathan Club.

I get home and I realize it is gone so I put on flip flops and drive back and march back in and dig in trash cans.

Nope. Nothing.

(You have to just pause and laugh here because it is too funny.)

I immediately email the hotel ( I had taken a picture of the certificate so I knew the email) and I cc’d the girl who ran the gala. I would have to be able to get a new certificate.

Right? Somebody please tell me Right!

So here is where faith enters:

It is okay that I spent that kind of money. My first instinct after I did it was to say “Who am I to spend that kind of money? I am just Jen.”

Screw that tape! I am Jen! I am Jen and I deserve this.

Also, the money will come back to me. It always does. Always.

I also have faith that this ridiculous amount of money I spent for 2 nights at a hotel will help find a cure for my best buddy Blaise.

I also have faith that it will all be worked out and they will be able to easily get me a new certificate so I can indeed book those ridiculously expensive two nights.

I have a vision and I hold it in my heart.

This vision is:

Me hanging out at this Parisian hotel and writing my book. 

My nephew and all the other PWS angels never having a hunger pang again.

Money never ever ever being an issue for me.

I have faith in these visions.

In the meantime, check out this hotel. And keep me away from galas, vodka, silent auctions and Brazilian blowouts.

Just a bit of info on PWS: Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as a common genetic cause of childhood obesity.

PWS was first described by Swiss doctors Andrea Prader, Alexis Labhart and Heinrich Willi in 1956 based on the clinical characteristics of nine children they had examined. The common characteristics defined in the initial report included small hands and feet, abnormal growth and body composition (small stature, very low lean body mass and early onset childhood obesity), hypotonia at birth, insatiable hunger, extreme obesity and intellectual disability.

Please please please vote daily on this video to help get PWS to the White House so we can eliminate these challenges once and for all.
Here it is.
It will make all the difference in the world.

Renay Compere, far left, owns Pop Physique in Santa Monica where I host my workshops and has a son with PWS

manifesting, Wayne Dyer

Hanging with Wayne Dyer in Atlanta.

April 14, 2012

With God all things are possible. 

Wayne talked of this a lot today. Now, I have heard him speak a lot. But today this got me. A chill ran through my body, as it does more and more lately. A sign that I am paying attention to what resonates. Or that more is resonated lately? That I am connecting to things I am meant to be connecting to more often?

All of the above.

And then some.

All. Things. Possible.

So what does that leave out?

NOTHING.

I love this.

I had that feeling today as I sat there in the second row as a guest of the author, my sister Rachel on my side. All the Dyers and Anita Moorjani and her husband wearing my blue Manifestation bracelets. Sara Blakely, founder of SPANX and the world’s youngest billionaire wearing my Manifestation bracelet.

Why?

Because: Anything is possible.

I dreamed this.

Over and over.

This is the life I want.

I want to be inspiring people on the level of Wayne and Anita and Sara. So why should I not be hanging out with them?

I told Wayne about my retreat to Maui next February and asked him if he would come over and talk to my group. He said “Anything is possible. Why not?

Ha! Wayne at my retreat? Pinch me.

(Who knows what will happen but… anything is possible kids.)

He told a great story today which I loved. He had just led a retreat on a cruise ship and he had asked everyone to go out and stare at the wake from the ship. He asked them to contemplate the wake. ( I feel a poem being inspired here already.)

The wake is the trail the ship leaves behind.

3 questions he told them to ask themselves:

1) What is the wake? Answer: the trail.

2)What is driving the boat? Answer: the PRESENT moment energy being generated is driving the boat. ( Key word: Present. Obviously.)

3) Is it possible for the wake to drive the boat? Answer: NO.

He suggested that most of us live this illusion though. The wake driving the boat! Ha!

I had such a breakthrough today. That kind of aha moment that happens before inspiration sinks in and kicks you in the teeth.

I think it is the poet in me that loves a good metaphor but, wow, is it ever an opportunity to give up your personal history, your crap, your story, when it is put so succinctly. So simply. So truthfully.

Another gem from today: Inspiration is when an idea gets ahold of you.

Motivation is ego driven.

Now that is something to think about.

I’d much rather be inspired.

As I am now in my life.

An idea has gotten a hold of me and I am being channeled. This is the best way, the only way I can truly describe my life these days.

Today Wayne said: writing is not something I do. It is what I am.

How beautiful a sentiment is that?

He talked so much about the “I Am” and I was so happy to be wearing my ” I am” Conscious Ink tattoo ( I gave him some and he went wild for them!)

Wayne talked about Divine Love as never changing, never varying.

There was so much to process today that it will take a few blog posts. Heck, a few years, but I wanted to share with you some inspiration and highlights.

Anita Moorjani, whom has become a friend, got up and spoke. She had a Near Death Experience after having Stage 4 cancer.  She came back because she has work to do. (Thank God she came back!)

Her message, to remind us all to be ourselves, is simple and IMPORTANT. She says more important than being positive is being yourself!

Her book Dying To Be Me has been called, by many, the most important book they have ever read. Wayne is a huge fan of Anita, as am I. She is so incredible, as is this work she is doing. Please take a moment and read my earlier interview with her.

She will change your life. As she says, remember your magnificence.

My dear friend Anita Moorjani. Please buy her book “Dying To Be Me”. It will change your life. Seriously. Go!

As usual my friend Skye sang (Wayne’s daughter.) She added Whitney Houston’s Greatest Love of All which made everyone bawl, of course. Saje Dyer also got up and spoke. She is Wayne’s youngest. Adorable and hilarious. She talked (spontaneously) about how she healed herself at age 5 or 6 with a child’s belief system. It was so beautiful and funny and impromptu. Another Dyer with a big inspiring future in front of her.

Sommer Dyer was also there, who will be guest posting very soon on my blog. Wait until you read this Dyer daughter’s post. She is very special to me.

Sommer Dyer, Saje Dyer, me , my sister Rachel, Skye Dyer

I met Tracy, his eldest and bought a purse from her amazing company Urban Junket. Tracy is gorgeous and funny. It’s like there is something in the water they drink? Tracy creates purses from recycled water bottles. Hello, Awesome!

My sister and I each bought one. Get one. They are cute and support the Earth. Hello, More Awesome!

Lastly, Sara Blakely. The world’s youngest billionaire and founder of Spanx. She got up and said a few words about how Wayne had been a great inspiration to her and was one of the reasons she is so successful. I gave her my blue Manifestation bracelet which you can see in the photos and my Manifesting tee. She was talking to us forever. To say she is cool would be an UNDERSTATEMENT.

The coolest billionaire I ever met.

And she is manifesting, no less.

Bam!

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Wayne and Sara Blakely are so funny! They are showing off their Spanx! ha!

My dad and his other daughters. Hee hee.
Saje, Sommer, Wayne and Skye Dyer.

Tracy Dyer and I. I am holding up my Urban Junket bag. Recycled Water Bottles. Bad-ass!!!

My buddy Skye Dyer and I. She sings so beautifully.

Skye singing on stage with her dad. So moving.

Saje got called up. Surprise!
She was funny and inspiring.
You can heal yourself with LOVE, she says.
This girl rocks so hard.

So here it is:

I am manifesting:

Sara Blakely sponsoring my sister’s One Small Step Walk for Prader Wille Syndrome and doing a q&a on this blog, as Wayne did.

Wayne Dyer definitely coming to my Maui retreat next February. It’s happening folks. I see it. Book early as we will go deep and it will be intimate. (click here to sign up.)

Wayne writing the foreword for my book.

Writing for Oprah.com

 

 

Join me here at @jenpastiloff

Join me here at @jenpastiloff

 

 

Guest Posts, Prader Willi Syndrome

Welcome to Holland

January 10, 2012

Welcome to Holland. Truly a post reading and sharing, Manifesters! A brilliant essay by Rachel Pastiloff on love and acceptance. BRILLIANT!

don’t listen to what anybody tells you that your child is capable of doing. What do they know. Children have spirits that are unmatched by anything I have ever seen in this world. Children can move mountains with their will and determination. I have been blessed to have an amazing doctor for Blaise who always tells me that he has and will continue to have a great life. ” Click here to read more.

Eating/Food, Guest Posts

Feeling Hungry

January 4, 2012

Feeling Hungry. (Today’s is a MUST READ, folks…. This blog was written on my nephew Blaise’s 5th birthday by my sister as she was fasting. Blaise has Prader Willi Syndrome which makes him feel hunger ALL THE TIME….

an excerpt~

“Today is day 2 of my juice fast. Today is also Blaise’s birthday. I am not going to lie, today was really hard. I was really hungry today. Worse than yesterday. Let’s not forget to add the massive headache and acne breakout in the mix.

Today I really understand what it is like for my son.

Today I understand what it is like to have Prader-Willi Syndrome.

Please read this one by clicking here.

Daily Manifestation Challenge, Video

I Can!

December 18, 2011

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This was my Status Update from Facebook yesterday:

Jennifer Pastiloff Yoga
I am just going to declare it.
Things I am manifesting for 2012.
~ Giving a TED talk.
~Being on the The Ellen DeGeneres Show show talking about Prader Willi Syndrome and making lemonade when life gives you lemons.
~ Being a contributor for Oprah Winfrey magazine
~Raising $500,000 at least for The Foundation for Prader-Willi Researchby selling my Manifestaion t-shirts and bracelets and through my retreats/fundraisers etc.
~My blog Manifestation Station www.manifestationyoga.com) having 1 million subscribers. And awesome featured guest posters.
~ Selling my book
~ being on Modern Familyas I teach Cam yoga. I can teach the rest but it must be Cam especially. ( Eric Stonestreet)
~ Joining Dr. Wayne W. Dyer (my mentor) on his tour to at least one city. And having him write a “blurb” for my book since he was my inspiration.
Gifts And Miracles Everyday: GAME ~ Free Yoga for Kids w/ Special Needs (my seva project) becomes an official non-profit and has volunteers in at least 5 cities
~Living outside of my comfort zone more often with more humor

~~~~

Thanks to all my students who shouted ” I can!” in class while we were in boat pose!
Birthday, Prader Willi Syndrome

My Birthday Request.

December 12, 2011

Dear Manifesters,

It is my birthday today and I can safely say it is the best birthday I have ever had! What would complete it is if you supported PWS research and bought a Manifestation shirt or bracelet!

My latest TinyBuddha piece got published today, of all days! Here it is.

It is called “The Future is Completely Open” and along with GMA, it is an incredible way to celebrate my birthday! (https://tinybuddha.com/blog/the-future-is-completely-open/)

Click this icon to read my birthday post on TinyBuddha.

I had Good Morning America on my vision board and yesterday we filmed my segment at Equinox South Bay during my karaoke yoga class. My interview is later today. Yes, I visualized it and it happened.

I acted AS IF.

 

A picture of my vision board that I made at my Manifestation Ojai retreat in September. See Good Morning America at bottom? (GMA)

It will air Dec 26th or 27th. I tell you as a reminder that you can manifest anything you put your attention on.

Deem yourself worthy to receive. (Took me a long time to get this one, folks. But I got it now. I am worthy!)

Thank you Wayne Dyer for teaching me that years ago! I look forward to teaching yoga at your conferences, my mentor!

All I want for my birthday is that you buy a Manifestation t-shirt or at least share the link. All money is going to charity for Prader Willi Syndrome, a rare genetic disorder my nephew has, and also to research for Tay Sachs (a fatal disease my friend Emily’s baby Ronan has.) Please consider buying or at the very least sharing and learning what these disorders/diseases are. I sent my first $500 check into the Foundation for Prader Willi Research last week and it felt so good.

You will notice on the Good Morning America segment that I am wearing a Manifestation tank and so is Cameron Mathison. Many of the class did as well and everyone wore their Manifestation bracelet. The bracelets are by donation, with a minimum of $3.

Here is link for bracelets.

Lego men manifest too! You can also get them from me in my public classes. Please post a picture of yourself wearing your bracelet declaring what you are manifestinh!

 

Here is link for tees and tanks. Please feel free to email me with questions and of course, we can ship them. Please specify if you want a tee or a tank in the message. https://www.jenniferpastiloff.com/PayPal.html 

 

My client and friend Alex Albrecht manifests with the gold shovel he got when he was on Jimmy Fallon a couple weeks ago. (Check out Alex's Voltron short that he manifested!)

Renowned yoga teacher Tamal Dodge manifests at The Yoga Collective in Santa Monica.

 

GMA correspondent and actor Cameron Mathison and I wear our Manifestation gear.

 

Thank you all for being a part of my life.

Keep manifesting your life,

one laugh at at time.

@manifestyogajen

ps, I am teaching a special birthday yoga class tonight at The Yoga Collective in Santa Monica. Feel free to join us at 8 pm. I will bring shirts and bracelets and a big hug for you.