This is what cancer does: it makes your body unknown to you, an alient presence dragging 50lb weights on each ankle and around your neck. You are exhausted, so exhausted physically and mentally your brain can’t send proper signals to get your unresponsive limbs moving. One time, for three days, you couldn’t even wash your face because it was too much effort to lift your arms. When you couldn’t stand your own smell anymore you tried to take a shower. It wasn’t your own body odor you were smelling, it was the drugs you’d been infused with: TCHP, Taxotere, Carboplatin, Herceptin, Perjeta. They were seeping through your skin, through every orifice and the metallic medicinal smell was making you as nauseous as the drugs were. You turned on the shower but the weight of the water pushed you against the shower wall and you struggled to turn the water off. You sat soaking wet on the side of the bathtub until your spouse came to check on you.
“Honey, are you ok?” you heard her ask from the bedroom. When you didn’t answer she rushed in to the bathroom, saw the puddles of water at your feet, grabbed a towel and started drying you off. “You scared me when you didn’t answer,” she told you as she was drying your back. You knew she meant she thought you were dead.
You now spend hours on the internet trying to get more information about cancer, how you could have gotten it, what your chances are, but once you start reading you close your laptop because you don’t really want to know that the survival rate is only 70% five years later for your late Stage 3A aggressive breast cancer. What about 10 years or 20 years you ask, but nobody has those statistics. You don’t want to think in terms of surviving only five years. You don’t want to think that there is a 30% chance you could be dead before the five years are up. You look around your house in Santa Fe, the one you and your spouse bought for retirement that you don’t live in full time yet and you know that in five years she may not be ready to stop working. You want time here together when she retires, time to build a roof deck so you can sit and watch the sun set on the Sangre de Christos every night.
You’ve read all the other statistics about who gets breast cancer, the two most likely being you’re a woman and you’re aging. 77% of the women diagnosed with breast cancer are over age 50. Since when did age 50 mean you were aging, you wonder. Women who’ve never had children, who start their menses before age 12, who took oral contraceptives and who do hormone replacement therapy are at risk. Women who are overweight, drink excessive amounts of alcohol, who are physically inactive and exposed to environmental pollutants are at risk. You fit some of the categories but you never took hormone replacement therapy, you don’t drink excessive amounts of alcohol and even though you are overweight you are physically active. Back when you thought you were straight, you took birth control pills for five years. You’ve never smoked. Ever. In your mind only people who smoke get cancer, people who won’t or can’t stop smoking and take drags on their cigarettes from a hole in their neck while they’re hooked up to oxygen.
Cancer. This cannot be your life. This is not your life. This will not be your life. You do not want to understand what these medical terms mean, do not want to become comfortable with spouting out breast cancer vocabulary and treatment options, do not want to know that once your treatments are over the cancer could come back. Once this is all over even if you’re told you are cancer free, it’s only for the moment, that place in time, that snapshot, not forever. You want forever. Continue Reading…