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Guest Posts, healing

I Diagnose Other People for a Living, but No One Can Diagnose Me

July 15, 2019
surgery

By Melissa Neff

My psychology career has been devoted to helping other people learn about themselves. But when chronic back pain usurped my life, no one could tell me what was wrong with my back, or how to fix it.

As a psychologist in private practice, I divide hours into 15-minute segments, punctuated by the beep of a timer and my client’s choice of Batman or emoji stickers. A few weeks ago, I handed Jaden, an energetic and wiggly 6-year-old, a pile of putty to fidget with as we waded through an IQ test. Through a projective storytelling task, I learned what monsters were hiding under his bed, and what type of laser proton field he plans to construct to keep them out.

When Jaden’s parents return for the results, I explain, “Assessment is like pieces of a puzzle. Each test tells me something about your child.” Test by test, I plot out Jaden’s abilities relative to other kids his age on a giant white board, dotting his exceptionalities and weaknesses in purple marker. “He can solve 8th grade math equations, and he is smart enough to grasp that one day he will die; however, this thought, which most 6-year-olds can’t yet contemplate, terrifies him. So, he has constructed a laser field as a way of coping with demons that he does not yet understand.”

I inundate Jaden’s parents with labels – Gifted, ADHD, Autism Spectrum Disorder – labels which do not define him, but which describe him so we can strategize how to best help him. When Jaden’s parents leave my office, I want them to understand their child better. I want them to feel supported and validated about what they’ve always known to be true about their child, which often, no one else saw or believed. I want my clients to have answers.

Like many psychologists, I have, too, have spent some time on the other side of the couch. Like Jaden, I, too, have been plagued by anxiety. When I was still healthy, I spent nearly every day running and dancing and hiking those thoughts away until they melted into a pool of sweat at the back of my tank top.

But all of that changed six years ago, when I twisted my left foot the wrong way while shaking my booty to Rihanna during a high-intensity dance class. When my foot didn’t heal, the podiatrist shoved it in a boot for two months, which slanted my pelvis and led to a gradual stabbing in my low back that didn’t remit when the boot came off. I began to curse the Devil Spot, the dwelling inside my low back where it felt as if tiny trolls were stabbing me from the inside, punishing me for a transgression they had yet to reveal.

No matter how much stretching and resting and icing I did, the Devil Spot nagged at me, pleading to be heard like a tantruming child. Its screams grew louder and louder until they were all I could hear. Pain eclipsed my every waking moment, and suddenly, I became one of 25 million people in America with chronic pain. At work, I couldn’t stand up and talk to my clients for longer than 3 minutes. At home, it was all I could do to not toss a spatula across the kitchen, infuriated that I couldn’t stand for long enough to sauté a goddamn pan of broccoli.

I threw all of my free time and savings into rehab. I just wanted to dance again, to run again, to feel my body sherpa up and down mountainous hiking trails the way it was made to. My osteopath glided and jerked my left leg until my pelvis straightened, explaining in carpenter-speak how a normal pelvis should connect to the spine without jamming. My chiropractor jerked me back into place, asked me for my copay, and rushed me out the door. After each adjustment, I slid back into crookedness, but I kept going back for more because I didn’t know what else to do. My physical therapist urged me to try water aerobics. After about fifteen minutes doing low kicks with the 80-year-old women in my class, the Devil Spot detonated, forcing me to hobble out of the pool in tears.

Pain became the only thing I could think about. Nothing I did to stop it helped. In fact, every intervention seemed to generate more pain. The only thing everyone agreed on was that I should avoid back surgery. Failed back surgery is so common that it has its own diagnostic code.

Months passed. Years passed. For a while, I sought relief instead of fixes. I tried every type of massage –Hawaiian Lomi Lomi, deep tissue, and Rolfing. I begged Chinese doctors to poke my feet with long acupuncture needles. I asked a woman who saw angels to clear up energy from my past lives. The stabbing would relent for a day or two, but never more. So, I stopped. I stopped getting adjustments. I stopped trying to hike. I stopped at my third physical therapist. I stopped having dinner parties. I stopped getting invited to dinner parties. I stopped having sex or only had it in the dark, where I could covertly wince.

More months passed. Each day, I averaged about a 7 on the pain scale. My stomach ached from popping Ibuprofen like Tic Tacs, but I needed them to get me through the day. I hated my life. I hated my job. I hated myself. I was becoming a person I didn’t recognize, a person whose fat clothes didn’t fit, a person who got her only endorphins from Dairy Queen Oreo Blizzards. I needed answers. I needed to find someone like me, someone who would sit with my images, get out their white board, and contemplate my symptoms until they morphed into the correct diagnosis and paved a road towards treatment. I didn’t care anymore that this might mean someone drilling my spine apart, filleting me like a fish, and rebuilding me piece by piece. I was out of money and patience, controlled by something I couldn’t get under control no matter how hard I tried.

Dr. Keller, my pain doctor, agreed that it was time to consult with surgeons, who are known for their diagnostic precision.

Surgeon Number One suggested there might be a tear in my disc.

Surgeon Number Two diagnosed sacroiliac dysfunction. If he just literally could nail together my pelvis to my spine, it would become less mobile and less painful, he said.

Surgeon Number Three, the arrogant one who I was sure would break the tie, turned around slowly in his leather chair and said, “I’m not sure why you’re here. There’s nothing wrong with your back.”

“Excuse me?” I asked.

“There’s no surgery I would do on your back, because it’s totally fine.”

The tears I’d been holding back busted through, my face opening into a floodplain. “It’s fine? Then why am I in so much pain? Why does my back stab so badly that I can I barely stand, or concentrate? Why can’t I ride in a car for longer than an hour? Why can’t I get through Costco without an automated cart?”

“You just need physical therapy.”

“I’ve tried that. Three times, with three different therapists. It hasn’t worked.”

“Acupuncture can also help.”

“I’ve tried that. Twice. Didn’t work.” I breathed back the snot dripping from my nose. When he didn’t offer me a Kleenex, I wiped it away with my sleeve.

“Do you think there’s a tear in my disc?” I asked. “That I need a fusion?”

“No.” But he leaned in closer as he noticed my tears.

“You know, I’ve had some patients with similar pain. You know what helped them? Therapy. They go see a therapist, talk a little bit about their family, and in three, four months – their pain goes away.”

Clearly, this asshole had omitted reading the check-box where I’d listed my profession as “psychologist,” implying that I know something about this stuff. Had he read any of my check-boxes? Was he saying that I was crazy? That I had conjured this problem within my body as a way of dealing with my issues? Had he read the referral from Dr. Keller, who’d shot me with cortisone in my SI joint three times that year, issued me a handicapped parking pass, and sent me to this man for an actual answer?

In my car, my head fell on the steering wheel, dousing it with sobs. I wanted to call my partner to debrief, but what was the point? I was still at the same place, with no answers.

For weeks, I contemplated my choices. I insisted that my doctor perform the dangerous discogram that did, indeed, reveal a tear in my disc. I had a minor surgery to cauterize the disc. But when I started to move again, the Devil Spot ignited and raged on. I blew up balloons with my new physical therapist to pull more air into my left lung in an attempt to align both sides of my body. I let a different physical therapist put her finger in my vagina, inspecting my pelvic floor for tightness. I tried new medications. I cut down my hours at work. I forced myself to meditate. None of it helped.

Left without a clear direction, I made a radical choice: to have a surgery that wouldn’t fix the problem, but which would mask the pain. An implanted spinal cord stimulator would send soothing signals to my brain to divert it from the perception of pain. I scheduled the surgery, but my insurance required me to have a psychological evaluation first. After laughing my ass off at the irony, I drove three hours south and sat all day in a fake leather chair like the one I had for clients in my office, checking off answers on personality inventories I’d spent years administering to other people. The psychologist gave the green-light, but on the eve of my surgery, my gut rumbled with uncertainty. Scanning my brain for a last-minute fix, I recalled a conversation I’d had with a friend’s father years ago, who told me that a physiatrist, a doctor of the muscles, had saved him from back surgery. I Googled physiatrists, found Dr. Landon, who was new in town, and told Dr. Keller that I wanted one more consult before moving forward.

In his office a week later, Dr. Landon thanked me for sending him a three-page synopsis with all my provisional diagnoses and every treatment I’d tried. He’d reviewed that and my imaging the night before. He spent two hours asking me a series of rapid-fire questions to rule out all kinds of different disorders. He looked me in the eye and listened to my story. He offered me more Kleenex as I cried. He spent two hours examining my hips, pelvis, legs, and back. He told me that he had a few ideas about what might be wrong, and he labeled them all: Sacroiliac Joint Dysfunction. Pelvic Floor Dysfunction. Hip-Back Syndrome. Myofascial Pain Syndrome. He assured me that we would go down each rabbit hole, investigating symptom by symptom until I had my answers. He didn’t have a white board, but he did make a drawing on his iPad explaining how my hips might be causing back pain, which made me consider my symptoms in a new way.

Dr. Landon asked me to postpone surgery until I tried the rehab program he created for me. “I will do my very best to help you,” he said as I left, “But I can’t promise anything.”

In the safety of my car, I simultaneously grinned and sobbed, allowing child-like bawls to crawl up my chest and quake out my lips, loosening my grief like leaves on a tree that had needed a good shake to break free. Finally, I had found someone who would diagnose me with the same level of precision, empathy, and care as I did for my own clients. I always tried so hard not to cry, not to complain, not to ruin conversations by talking about my pain, but hopelessness had become a rock in my chest, hardening around my broken heart.

For the first time since the Devil Spot had made my life a living hell, I felt less alone.

Dr. Landon’s program is working. I can stand for 30 minutes instead of 3. I can do half of an old lady water aerobics class without tears. Last week, I walked into a gentle dance class and grapevined and kicked behind Dolores for ten whole minutes without stopping, and shouted with her along to Huey Lewis. The more I squat and lunge, the stronger the tissue around my disc becomes. I am forcing myself to meditate, and when I sit in silence, I learn things – about the way I sit, the way I stand, the way I don’t take in full breaths, how I hold in stress until it becomes a stabbing pain in my ass. Surgeon Number Three was right, even if he was a jerk about it; I needed to go back to therapy, because how I manage my emotions is a piece of my puzzle.

Twice a week in neurofeedback, my therapist attaches electrodes to the calming center of my brain. Twice a week, I leave feeling less anxious, and in less pain. I am noticing that when I have a bad day at work, the Devil Spot cramps and pulses much earlier than usual. As I lean forward to bear witness to other people’s stories of abuse and abandonment, my muscles clench more with the weight of their stories. When I am a receptacle for other people’s pain, my pain worsens.

In therapy, it is my turn to speak. I tell my therapist the truth: I am no different than my clients. I was born with big feelings, big reactions, big thoughts. I never felt safe expressing them until I met my current partner, who holds me when I cry and does not ask me to stop, who listens to my ideas and loves every part of me that’s big.

It has taken me forty-one years to realize that I’ve spent my entire life putting other people first. As a six-year-old, I became a mother to my mother. After my dad left, she secured two or three jobs at a time to make sure we had Gap jeans and could afford to play after-school sports, but there was no time for cooking, cleaning, or feelings. When I tried to tell my dad how much I missed him on visits, when tears welled up in my eyes and my words grew gummy, he insisted we change the subject because it was obviously upsetting me. For him, I joined clubs and earned scholarships, learned to courageously mute all my big feelings, and championed his marriage to a woman who smiled at me through gritted teeth to ensure that I wouldn’t take up any more of his time. It was the right thing to do – choosing attachment over acceptance meant that I would be supported, loved. When I headed off to a big city college, I felt brave, strong, and independent. By graduate school, I was on my way to becoming a logical, impenetrable adult. I had a life plan: I would help people with their big feelings, and run far up mountains away from my own.

But I didn’t respect myself. I didn’t know who I was if I wasn’t helping people. I didn’t know that my voice needed to be heard too, until the right people listened. Now, I’ve begun to stop and notice when the pain flares, and ask myself what I am feeling, not feeling, or not saying. I let myself feel it, although I am still learning how to say it.

The more I creep back into my body, which froze with pain until I felt safe enough to learn why, the more I release the trapped emotion from my back and baby the Devil Spot back to life, the less I want labels and procedures. I insist to Jaden’s mother, who cries when I label him with autism, that a diagnosis does not define a person, but is a valuable guidepost – a roadmap – to greater self-understanding. What I don’t say is: I understand. We are all jagged and broken in some places, but if we don’t let our edges come up for air, if we don’t let others see them, hold them, and heal them, they will fester and become unnecessary wounds.

Melissa Neff is a writer and psychologist living in Montana. Her fiction has been featured in WitLit and Wild Quarterly. She is currently writing a memoir about chronic pain and how it has unexpectedly healed her body, mind, and spirit. She is fortunate to spend most of her days supporting her differently wired clients to become their very best selves. You can follow her on twitter at @MelissaNeff17.

 

Guest Posts, healing, Inspiration

Life After Stroke

September 24, 2018

By Arturo The Cuban

It was raining. It was the type of storm that dropped heavy downpours darkening the day. It was a bitter 42°F outside. The date was December 4th, 2014. It was the day I was released from the hospital after suffering a stroke at the age of Forty.

Yeah. 40.

Can you believe that shit?

Forty years old and I felt as if my life had just ended. I would no longer be able to work as a government contractor, a skateboarder, or musician. I would no longer be able to continue on the path I had chosen that was both an exciting and miserable as anyone could imagine.

It was for me anyway. Damn.

Worry filled my soul as I knew not how I would support my family moving forward. How would we survive? How would we eat? Pay bills? Questions I could not answer that would only serve to increase my pre-existing anxiety disorder and post-traumatic stress disorder (PTSD).

Regret enveloped me for not listening to the warnings of my doctors. My body, already damaged from decades of back-breaking work had finally failed me. I no longer would have any control over my future; about to be at the mercy of the government. People whom I do not know.

Years of being a semi-pro skateboarder, a heavy metal musician, a contractor, had steadily destroyed my body. I knew it. My doctors warned me for years. Prior to the stroke, my body had been sending me warnings via heat-strokes, dizziness, and fatigue. Signals that I ignored.

Five herniated discs in my lower back, two unrepairable tendons in my right hand, PTSD from the bodies in both the streets and in the homes of New Orleans after Hurricane Katrina. I was a complete wreck. Yet I pressed on.

My neurologist and close friend would warn me and talk to me about slowing down and taking it easy. That working 12-14 hour days in the blistering hot sun, with temperatures that could climb above 100 degrees in the summers with regularity, would only lead to more health problems and potentially my demise, he would insist.

Again, I ignored his pleas.

What was I to do? This is what I’ve done my whole life. I can’t just stop. So my attitude was along the lines of “psssh, he doesn’t know,” meaning he has no idea about my life and what it takes to survive.

How would I support my family if I did that? How could I continue to provide my wife and kids with the lifestyle I made possible for them? My wife didn’t have to work, my kids were homeschooled, and if the family ever needed anything, I would provide it for them. Slowing down, for me, wasn’t possible. It just wasn’t.

We were doing alright.

Until of course that fateful day. Continue Reading…

Guest Posts, healing, Health, Young Voices

Choices

June 15, 2018

By Kelsey Brey

My life has been abuzz with talk of “choices.”

So and so either made or did not make a choice to end his life depending on whom to talk to, or what train of thought you best find yourself hopping aboard. A good friend of mine wrote about how he was told as a child that he could be anything. I imagine most of us were, even if not by our parents-we were indoctrinated with this message from the educational institutions we attended. “Choose to shoot for the stars and if you fail, you land among the moon” said the poster in my elementary school.

Choose to attend college, choose to have that fourth, fifth, sixth drink.

I wanted to write some well worded prose on what it means to be lied to by a society where the choices are already made for us, and choosing to not choose only alienates. Choosing to go against the grain isolates. But, now I’ve gotten to this point and that idea is losing its appeal for me. Continue Reading…

courage, Guest Posts, healing

Finding Ahimsa

May 11, 2018
fault

By Erin Walton

I had just finished a twelve-hour shift waiting tables and had plans to meet a girlfriend for drinks, in celebration of St. Patty’s Day. In my car, I splashed a layer of green sparkles on my eyelids and spread some more across my cheeks and then met Teera at a bar downtown. From our corner booth in the bar, I sipped a single cosmopolitan made with cheap vodka while undressing handsome men with my eyes. We stayed until closing time, and at the end of the night, Teera offered to let me crash on her couch but I refused. I had a 7 a.m. breakfast shift at the restaurant and I couldn’t risk being late. I worked in the small mountain town of Estes Park, Colorado, an hour’s drive up the canyon from my home in Boulder. That night, I insisted on driving up the canyon.

Sometime between 2:30 and 3 a.m. I fell asleep while listening to Beck’s soulful, whiney, “There’s a place where you are going/You ain’t never been before/No one left to watch your back now/ No one standing at your door.” In the moments before drifting off, the song hummed from my CD player while I drank lukewarm gas station coffee. This I remember vividly – the exact song that was playing, “Lost Cause” – although I cannot remember what was next, only that I felt my car hit a rock. My eyes jolted open and my car catapulted into the air and down a steep ravine where I would remain for the next twelve hours. Continue Reading…

Guest Posts, healing, loss

Air Hunger

April 29, 2018
hurt

Today my sister has been dead 17 years. I can still remember the feeling when the world was whisked from under me as I sat on the floor in the middle of the night listening to my mother tell me Cristi had died. They say time heals all wounds, and I suppose it is true, but the scars those wounds leave behind are nasty ones. Has it gotten easier as the years have gone by? Perhaps in some ways, but in other ways I remain permanently altered – the attacks that began after her death continue. This piece was originally published on the site in 2014.

By Angela M Giles

They always begin the same way: a sudden flash of heat is followed by a cascade of electricity that deftly makes its way through my body in a quick, cruel wave. As soon as it hits my collarbone, I feel my face begin to flush and immediately put my hand to my throat, a quick reflex to try to cool my neck, a strangely protective measure. Then the chill begins. I focus on breathing. I keep my hand at my neck. If I can feel a pulse beneath my skin, I am still ok.

The first attack occurred on May 29th, 2001, exactly thirty days after my sister died, twenty-four days after she was buried, seventeen days after I returned to the east coast, seven days after I went back to work and four hours into my workday. The official diagnosis for what I experienced was ‘air hunger.’ But I didn’t feel a hunger for anything. There was no sense of lacking something or of needing anything. I wasn’t hungry, I was being invaded. I was being overrun. Something was winding through me that I couldn’t control. Continue Reading…

Grief, Guest Posts, healing

Boys of Winter & Prairie Things

April 25, 2018

By Shannon Haywood

I was sitting in Dairy Queen on Saturday, grabbing a quick bite before heading to my friend’s husband’s memorial service, when I was suddenly, and without any control at all, overcome with tears. I sat there for a few moments, trying to stop the flow, and kept my head down, in order to hide my face from those at tables surrounding mine.

People that were with their children, no doubt fueling up prior to spending a Saturday running errands, taking the kids to indoor leisure centers or movies or even the pool. Endless possibilities and even more activities that every Canadian family has spent Saturdays doing.

Maybe even headed to play hockey. Continue Reading…

death, Guest Posts, healing

Dance of the Not Dead

April 18, 2018
funerals

By Elizabeth Fournier

As long as I can remember, I was always dancing around the house. Mom and I were fans of Donny & Marie, so I always got up and danced when they came on TV. My mother would be lying on the couch because she was always sick, but my dancing would make her smile. I danced my heart out for her.

One time, I shook, shook, shook my booty and Mom’s smile disappeared for a moment.

“Good girls don’t do that,” she warned.

What! It seemed so natural to move my butt when I was dancing. Why not? I tried not to do that move any more, but it was hard.

My formal dance training in tap, jazz, and ballet started at age four. Dance class was super fun because I had a natural talent for it. When the music started, most of the girls hung back, uncertain. Not me; I pushed to the front, eager to perform. Having practiced all week, I could execute every move with confidence. Continue Reading…

Grief, Guest Posts, healing

Hidden Love

March 30, 2018

By Jamie Della

She was a mystery, a ghost as close as my skin. I discovered her love through the scent of old photographs and White Shoulders perfume. And there she was: Della Ruiz Martinez, my nana.

I bought a bottle of White Shoulders when I discovered it was her favorite perfume. I was 19. The first whiff of bergamot is astringent and sharp, like her acerbic tongue. They say she could cut you to pieces with her words. She was a Scorpio woman: born on November 12, 1920 and died November 14, 1967 – 39 days before I was born. They say she happily anticipated the birth of her first grandchild. But liver disease prevented her from holding me in her loving arms. She became two-dimensional and flat: a framed image of young Della at four-years-old, a brown-skinned cherub with a crown of baby’s breath at an altar. They gave me her name as my middle name: an angel and a legacy. It was nearly twenty years before I saw another picture of her. Continue Reading…

Guest Posts, healing

September’s Cellular Memory

December 4, 2017
trauma

By Sarah Shoemaker

I began to understand love during the month of September two years ago. Bon Iver was the soundtrack.

I had been separated from my partner and husband of fourteen years for about fourteen months at that point, and I went to visit an old friend in my home state of Pennsylvania. I was weaving this short visit with him into a trip with family, and my son stayed with my mother so that I could talk as late as I wanted, and likely even spend the night. As we were planning this visit, two days prior to the first evening we’d spend together, it hit me: oh. It was that kind of visit. We didn’t talk about it beforehand. We were intrigued to reunite in these first years after our divorces, ten years since I’d lived and worked in this area, after we saw on Facebook that our inquiries into the topics of true femininity and masculinity were crossing paths.

I have a trauma history. My body remembered abuse and manipulation of the young female body that my mind can only ever remember in snippets of detail. The emotional abuse has been discovered through years of intentional exploration in therapists offices, with energy work and somatic investigation. My family was ripe with attachment issues and emotional control. When I was eighteen, I became pregnant, and it was determined, by the family, that I would place the child for adoption. At nineteen, I birthed my first child, a daughter. I birthed her naturally and reverently. I gave her the middle name of Faith and chose her parents a few months prior to her birth. Along with my family, I blocked her birth father from the entire experience, and I set about following the prescription of success that was laid in front of me. Work hard, and one day, you can have a baby again, and do it right the next time. Continue Reading…

Grief, Guest Posts, healing, The Aleksander Fund

To My Sweet Baby Girl, After Her Death.

October 31, 2017

 

By Dannielle Gallagher

CW: This post discusses infant death. To learn more about The Aleksander Fund or to donate please click here.

To my Sweet Baby Girl, Poppy:

The minute I discovered I was pregnant I knew you were girl, just like I knew we would be the best of friends – that is after you outgrew some of that fire you inherited from your Daddy. I knew I loved you more than I ever thought possible, all before you were the size of a pea. I knew that you would grow to be brave and strong and determined. I knew that you would grow to also “know” things in that same deep down way that I sometimes do. I felt that about us, that we belonged to each other, right from the very start.

 

What I didn’t know, was as you grew inside my belly (and my heart) you were sick. You see as you were growing, your tiny heart didn’t form quite right. There was a little valve inside it that wouldn’t close, so as you grew from a tiny seed into our beautiful little Poppy, your heart became too large to fit into your chest, it expanded to squash the organs that would make it possible for you to ever take a breath. Your official diagnosis took up most of a page, it started with your heart, compounded with a series of devastating complications, and ended with three serious looking specialists in an ultrasound room, telling us that your condition was “not compatible with life.” Those words will haunt me, always. The moment I learned that I wouldn’t get to watch you grow into the extraordinary woman I dreamed of, was excruciating. It was also only just the beginning of my heartache. Your diagnosis also came with a recommendation of medical termination.

I won’t say I didn’t have a choice, because I did, but ultimately every option I was presented with still ended in your death. So I picked the option that sucked the least, the one that I thought I could best live with. I made the decision to love you enough to let you go in peace, surrounded by those who love you most in this world. It wasn’t a choice I wanted to make, but I made it, because sometimes being a Mother means doing what is best for your child, even though it breaks your heart to do it. I want you to know that If I could have chosen to have you live a healthy and full life, I would have given everything to give you that. Its devastating to know that even with all of the medical miracles we have in this day and age, there wasn’t a miracle big enough to save you.

Continue Reading…

Guest Posts, healing, The Body

Robot Kisses

August 27, 2017
shower

By Laraine Herring

You’re separated from your family at 5:30 am and taken with a group of six down a wood-paneled hallway into an older, darker portion of the hospital. You’re assigned a bed and given a plastic bag for your clothes. You have to take your third pregnancy test in three days because, why the eff not, even though you haven’t had anything to eat and very little but Gatorade mixed with Miralax in three days in preparation for your second colonoscopy in two weeks and the colon resection surgery, and besides, all that rectal bleeding from the malignant tumor didn’t make you feel very sexy. You wonder if men have to take a fertility test before surgery. Seems only fair.

You tell them your name, again, confirm your birthday, again, and they scan your barcode on your ID bracelet, which is next to a wristband that contains the numbers for your blood vials, which are stored somewhere in the building should you need a blood transfusion, permission for which you had to give 48 hours previously. Your allergies are marked on a red band, and now you have three bracelets. Continue Reading…

Grief, Guest Posts, healing

Over and Over

July 5, 2017
fishing

By Jessica Knuth

There is an unexpected sense of loneliness in watching the dead body of someone you love being taken away from your home. Alone in the back of a car. Zipped up inside a body bag. Driving away into resounding blackness.

Somehow, in your delirium, through the tears and snot, through the sharp pains in your chest and loved ones touching your shoulders, your hair, somehow you manage to walk down the hallway where your Dad should be sleeping, where he has slept your entire life, and you look inside his bedroom, though you know you shouldn’t. The bed is unmade, sheets jumbled and repositioned in haste. There is a stain on the bed and you can’t tell if it’s blood, or urine, or vomit. Otherwise, the room is the same as it was two hours earlier when he was still alive. When his lungs still worked. His heart, his brain, however limited. Before he went from present tense to past tense. Animate to inanimate. Living to dead. Continue Reading…

Grief, Guest Posts, healing, loss

The Season Before Winter

February 22, 2017
paperwhites

By Marika Rosenthal Delan

The world was in a state of unrest when fall came.

In my home state of Missouri, people in Ferguson were rioting and burning shit to the ground. The only thing I was burning were hours of sleep and some old notions about the way things should be. Watching the world in complete disarray already had me fighting back vomit as two pink lines appeared on the stick I had just peed on.

Forty had descended on me like a wrecking ball that summer. I was surprised to find myself embracing this milestone, but had long considered a third child out of the question. I had always joked that I wanted three. But that was before 40, before three back surgeries and endometriosis.

Before. It was before my body was breaking.  A baby was not on my radar and it showed up like a UFO.

I had been exceedingly careful with my birth control after once getting pregnant with an IUD- what are the chances? I looked it up: 0.8% in the first year of use whatever the hell that means.

I had eagerly signed consent for tubal ligation while undergoing exploratory surgery for endometriosis the previous year. But I hadn’t met the required 30-day waiting period by the day of my procedure. I woke up from anesthesia with my tubes intact.

A plan B wasn’t immediately established. It took months of discussion after which my hubby finally manned up and volunteered for a vasectomy.  This was our three-part plan: We would make an appointment right after the holiday.  He would have the procedure. Then we would go to the movies. It would be a date, I joked. Continue Reading…

Guest Posts, healing

Learning to Mother Myself

November 22, 2016
snake

By Megan Galbraith

I sat on the stonewall outside my studio, reading Rebecca Solnit’s The Faraway Nearby, and thinking about how excited I’d been to get far away from my family. I’d been awarded a glorious month-long writers residency in Ithaca, NY from The Saltonstall Foundation. It was my first residency and I had no idea what to expect. What to bring? How to handle the silence? What if I couldn’t produce anything?

It had never occurred to me that I’d miss my family. I thought I’d craved solitude, but a month inside my own head was taking its toll. I was swept up in self-doubt and jumping out of my skin. I missed my husband, my boys, and my stepdaughter. I missed the dogs that I’d cursed daily for their endless silent pleading, “let me in, let me out, let me in, let me out.” I didn’t know how to be still with myself because it seemed there was so little stillness at home.

I looked up from the book and noticed a delicate snakeskin pinned beneath dead daylily leaves in the dirt to my left. The snakeskin was preserved in its entirety, from head to tail, not a rip or a tear. Its mouth was open as if it was mid-strike, and I could see the dark jeweled ovals where the snake’s eyes had been. It was nearly two feet long, a garter snake most likely, and the perfect embodiment of the reptile itself rendered like a tissue-thin sepia-toned X-ray. Continue Reading…

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