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Abby Braithwaite

Guest Posts, parenting, Special Needs

Improvise, Stabilize, Stagnate, Repeat

July 3, 2021
all

By Abby Braithwaite

“Mom, let’s go up there!”

“You don’t want to go just a little farther on the flat part, see if we can find the stream, and maybe see some of those frogs making all that racket?”

“No, up there! Hmph.”

My daughter stomps her foot, crosses her arms, and juts her chin at the near-vertical bank to our right. An expanse of loose rock, dead grasses and newly-awakened poison oak leads up to the abandoned mine above us, and beyond to the top of the rim-rock where her dad, brother and beloved babysitter are hiking. But really, it wouldn’t matter if no one was up there. Every time we have hiked this trail over the past couple years, off-roading has been this 4-foot, 9-inch teenager’s path of choice. She huffs again, tossing her pink bangs off her mostly-shaved head and standing firm.

“That way. Now.” It’s amazing how clearly she enunciates when she is mimicking my get-serious-and-listen voice. If only her speech therapist could hear her now.

“Alright, let’s go.”

***

If you want proof that evolution is dangerous, all you have to do is parent a teenager. Or teach one. Or just choose one out of the crowd and watch her move through the world. The fact that an entire species has banked our survival on the teenage brain is a mind-bender, and the ultimate proof that in order to get anywhere in life, you have to be willing to risk it all on a twist of DNA.

That first amoeba family could have just trucked along blob-like for an eternity, comfortable in its amorphousness, and populated this planet with slime. But no, some type-A couple of perfectly good cells had to go and mix it up and complicate the next generation with extra material, and things just went from there.

Improvise, stabilize, stagnate, repeat. Evolution in a nutshell. Sure there’s some loss along the way, but how else is a fish supposed to crawl out of an ocean and walk across the sand, if it’s not willing to take a chance?

***

As I follow Adara up the side of the hill, I keep one hand on the small of her back to remind her to keep her weight forward so she’ll tumble up if she trips, and not topple all the way back to the nice sandy path below us. As I feel her push herself up, muscles tensing under my hand, I notice again that her right glute is about half the size of her left, the result of a long-ago surgical repair on a bad hip, and I wonder if she likes this kind of climb better because it’s a break from the relentless, crooked pound-stumble that is walking when one leg is an inch shorter than the other. Maybe, like the short-sided mountain goats in that old comic, she knows she’s built for side-hilling.

Or, maybe she just likes to do it the hard way.

Either way, I’m glad to be walking behind her in the April sun, grateful I was able to get her off the couch and out the door after the rest of the group headed out on a hike I would have been on if there was someone else to hang out with my kid. And truth be told, I’m not sure I would have been able to keep up with them anyway. I’m probably better off down here where I can collect rocks, listen to the frogs, and watch the clouds roll by while Adara picks her way up this impossible slope.

***

And so, some number of millennia and branches of the tree of life later, we arrive at the human species. Like many living things before us, plant and animal alike, we had figured out that for the healthiest populations, we had to spread out to mate. Trees send their seeds on the wind. Thistles catch onto the coats of the wandering beta wolf, and so propagate new thistle fields on the other side of the mountain range. The scent of ripe berries on the breeze brings a feeding frenzy, and berry seeds are shat out in myriad piles across the watershed.

Travel to make babies. It’s a pretty foundational principle of procreation.

But humans had to complicate things. We birthed impossibly dependent babies that stayed helpless far longer than any other animals’ offspring, and we became programmed to nurture, to tend, to need each other. We created intricate social structures, interdependency, emotional attachment. How were we supposed to get far apart enough to mate safely, to ensure the mutations that would lead to increased variability and strength, rather than the dangerous effects of an insular community?

Enter the teenager, a creature designed to cast out on its own to points unknown, with a particular penchant for pushing away the very people it has depended on most for the past decade and a half.

***

We’re spending a few days at our family cabin on the Deschutes River in central Oregon. It’s on the site of an old perlite mine, where several buildings were converted to a fishing camp after the mine closed in the 1940’s. My husband’s grandparents happened across the place when the mine office building was up for sale, so we have access to a ranging two-story box in the desert that can hold more than a dozen people comfortably. It’s just the five of us this weekend, though. My husband, our two kids, and our babysitter, here off the clock to explore this place she has heard so much about in the years she’s been working for us.

On the far side of the river—you have to take a cable ferry to get here, with everything you need for however long you’re staying—with no internet or cell reception, and stone’s throw from the shriekiest mile of curving railroad track in the West, it’s a love it or hate it kind of place. It’s fiercely cold in the winter, and impossibly hot and dry in the summer. In late spring and early fall, it’s mild and lovely. In April and September, it’s all those things in the span of an afternoon.

Adara’s on the hate it end of the spectrum, but we ply her with salt and vinegar potato chips and let her smuggle her phone over the river so she has her music, and she puts up with it. And every couple days, I manage to get her out for an explore. Every teenager who has come of age here—except maybe my introverted fisherman of a husband—has had a period of hating the place, hating the spiders and bugs, hating being away from friends and stuck with family, hating, over the past decade, the prohibition on technology, which doesn’t really work here anyway. But they come, and they are forced outside, and they learn to take care of the place; eventually keys pass from the hands of one generation to the next. Corwin, my 11-year-old, loves the place still. But given her druthers, Adara would take a pass altogether.

***

A quick Google search on “evolution as risk”—looking to see if any researchers have asked whether evolutionary steps can be viewed as a species-level gamble—tells me I need to spend more time on research if I want to follow this trail any farther. I find hits on Darwin’s Dangerous Idea—the threat posed by the mere concept of evolution to the human understanding of our roots, when the theory first arose—and the evolution of risk, with lots of sub-articles on the evolutionary role of adolescence. And that’s part of what I am talking about here, of course, but my bigger question is about the gamble of mutation itself. Why evolve at all? Why not just stay the course?

A species grows from the mire, defines itself, settles into a niche. All is fine, if not terribly exceptional, to be a lizard crawling around on the ground. Everything is working, comfortable enough. But then one day a cold wind blows across your scales and on some cellular level, some strand of lizard DNA buzzes awake and—bam—scales grow into feathers, feathers grow longer, lizards spend more time on the edges of cliffs, lots of them fall off, and the once stable ground-lizard population is suddenly on the brink, life is a lot more dangerous. And then, one day, instead of falling, a lizard flies. And so we have birds, which never would have come to be if there wasn’t space for just the right mutations to build on themselves, improvising, stretching, changing.

***

“I can’t do it, Mom!” she shouts, after her third attempt at a handhold tumbles down the bank behind us. We’ve been climbing for about half an hour now and, despite frequent breaks, we’ve gotten through the hardest section. It’s grassier here, less rocky, and I notice that there’s a trail beaten by deer that traverses the slope off to our right, taking a gentler approach to vertical gain, following the contours of the hillside rather than heading straight up.

“You’re doing great, look how far we’ve come!”

She turns to look down, scares herself with the sheer drop, and turns back, crossing her arms and harrumphing again. “That scared me. I can’t do it.”

“Well, we can’t sleep here, can we?” I ask, attempting the light humor that will sometimes snap her out of recalcitrance. “And look, there’s the tree we’re heading for. We’re almost there. Look, you’re the leader, and you’re doing a great job, so I want to show you two choices. Either one is fine. We can keep going straight, up this way,” and I point to the rocky draw she’s been following, that traces a straight line between us and a budding oak tree. “Or, we can follow this sneaky deer trail that’s an easier path. I know it looks like it’s going the wrong way, but it twists back around, I promise.”

***

And what greater metaphor for this moment of improvisation, of leaving behind the cozy, safe, necessary known for some new dimension, than human adolescence? A risk-taking, precipice-walking, edge-living phase of our development carefully designed to carry us away from our community, out to points unknown, to mix with others and create new family lines. With the skills, knowledge, and strength to set forth for new spaces and places, but without the wisdom to worry so much about what’s coming; the power to plunge straight ahead to the next thing, without the discernment to think maybe there’s an easier way, around the corner, just out of sight. In order to survive babyhood, we needed to create the attached family unit. But in order to thrive as a species, we needed to find a way away from each other, a vehicle to spread the wings and sow the proverbial wild oats further afield.

***

True to form, Adara insists on heading straight up the draw, not interested in my advice about a so-called easier path. She’s tired now, and can’t make it more than a few steps at a time before she needs to stop and catch her breath, rest her shaking legs. She can see the tree, with the picnic rock next to it, and she’s confident in her knowledge of the best way to get there. Straight. Up. The. Hill. Though the pauses between pushing upward grow longer with each break, push herself she does, and we make our way slowly up the slope.

“MOM, I NEED your hand.”

“Kiddo, if I hold your hand, I’m going to pull you down the hill. Here, I’ll just hold your hi-“

“Fine, I CAN’T DO IT!” And she plunks back down, lifts up her butt to toss a sharp rock out from under her. It just misses my kneecap. “And I’m not a kiddo. I’m THIRTEEN!”

I take a deep breath and look out over the river. We’re so close to the top, where we can sit on a flat rock and eat the salt and vinegar chips and sing songs and tell stories and build fairy houses in the dust on the side of the old mine road while we wait for the rest of the crew to come down the mountain.

I just need to keep my mouth shut, and we’ll get there.

As a teenager with a developmental disability, my daughter perhaps inhabits the brink more precariously than others; she toggles in an instant between a deep dependence—still needing help to zip a zipper, tie a shoe, sneak a pee on the side of a mountain—and a fierce desire to do it her way, on her own, without interruption and condescension. But, then, the more I talk to her classmates’ parents, the parents of so-called typical children, the more I realize that it’s only really a difference of degrees. All the kids her age are doing this dance. She just does it a little more transparently. And she needs a little more help to get free of me.

As we push on up her chosen path, my thoughts continue to circle on this idea that as a species, we have banked our survival on this risk-taking phase of human development. And as we stop again, angry at a piece of sharp grass that pokes into the sock, I remember something our midwife said, back when people were still saying things to try to make us feel better about Adara’s Down syndrome diagnosis. Something about how there are people who believe that Down syndrome—a genetic mutation that causes a triplication of the 21st chromosome, rather than the typical duplication, and the most survivable trisomy, as these triplications are collectively known—is the next evolutionary phase of the human species. That the emotional intelligence that is a common trait in Down syndrome is exactly what we need to survive the challenges in front of us right now.

I never looked the theory up back then, to see if she was just blowing smoke to make us feel better. And now I suspect any discussion of the theme will be rife with stereotypes and platitudes about Down syndrome—about how “those people” are happy all the time, and are pure love, and are just perpetual children who have found some stash of joy and contentment that we should all learn from.

But watching my kid choose the hardest path with a force and determination that I could only hope to attain, I have to wonder. No, she’s not happy all the time. She bridles at her little brother just as much as any 13-year-old should. No, she’s not a forever-child. She’s determined to finish school, go to college, and live in an apartment without her boring parents and their annoying rules and chores. But her joys are deeper than just about anyone I know, and she doesn’t carry a grudge. She has a gift for finding lonely people and bringing them into the circle, and for making them laugh with bad puns and absurd knock-knock jokes. She navigates life’s most challenging moments with a resiliency we all should envy. Maybe we could all stand to move that way after all, or at least to weave a little of the ways of that bonus chromosome into our dealings with ourselves and each other. Perhaps we’ve achieved a place as a species where we can choose some of our next adaptations. Choose to weave a new way.

A new thought to ponder. Luckily, there’s plenty of time for thinking on these hikes we take together.

Abby Braithwaite lives in Ridgefield, Washington, where she writes from a converted shipping container in the woods overlooking the family farm. She enjoys the soundscape of sandhill cranes, coyotes and freight trains trundling from Portland to Seattle underneath her bedroom window. Her essays on parenting, escape, and disability have been published in the Barton Chronicle, the Washington Post, The Manifest-Station and the Hip Mama blog, as well as a handful of non-profit newsletters. In 2019 she created “Contained”, a chapbook of her collected musings. She shares her home with her husband and two children, three cats, and two dogs.

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emma

Stories of parent/child relationships can be complex, and Emma’s Laugh, The Gift of  Second Chances, is no exception.  Convinced of her inability to love her “imperfect” child and give her the best care and life she deserved, Diana gave Emma up for adoption. But as with all things that are meant to be, Emma found her way back home. As Emma grew, Diana watched her live life determinedly and unapologetically, radiating love always. Emma evolved from a survivor to a warrior, and the little girl that Diana didn’t think she could love enough rearranged her heart. In her short eighteen years of life, Emma gifted her family the indelible lesson of the healing and redemptive power of love.

Read Diana’s ManifestStation essay here

Order the book from Amazon or Bookshop.org

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Anti-racist resources, because silence is not an option

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Click here for all things Jen

Guest Posts, Writing & The Body

Life Cycles

September 9, 2019
rhythms

By Abby Braithwaite

I lift myself off the front seat of my car and dig into the pocket of my jeans to extract four off-brand ibuprofen. I pick out the pocket lint and toss the pills into my mouth, chasing them down with the dregs of my son’s water bottle, chilled from a night forgotten in the car.

I’m in the parking lot of not-my-doctor’s office, waiting for a midwife I’ve never met to remove the last piece of birth control I’ll ever need — assuming I can avoid divorce and widowhood for the next decade. I’ve done my time on pills that turned me psychotic, and a few rounds of IUDs that made my cycles flare up and down, and ultimately disappear. With this last, the tiny plastic Mirena, my uterus was so damn sure she was done hosting babies that she sucked the whole contraption up inside a few years ago, string and all. An ultrasound confirmed the device was in place, no immediate action necessary, so I left it there.

But my husband got a vasectomy last fall, and I’ve decided to let my body return to its natural rhythms for a few years before it shuts off, to join my adolescent daughter as she learns to navigate womanhood on her end, and I get ready for crone-hood on mine. With my husband snipped and sperm count tested, I made an appointment to get the IUD removed. My doctor, a family practitioner, doesn’t have the tools or techniques to go in and get it, so she sent me to the big clinic I left ten years ago because it was so cold and impersonal. They were able to get me right in, so I dropped the kids off at school this morning and now I wait in the parking lot.

It’s time, I know. I swapped my mini-van for a Chevy Bolt last spring, graphic novels and granola bar wrappers have replaced board books and Cheerios in the back seat, and the other night I found myself saying, “If you guys are going to be so unappreciative, you can make your own (damn) dinner,” and the kids fed themselves on cereal, eggs and leftovers.  My daughter, almost thirteen, started her period more than a year ago; her developmental disability means she needs more support with it than another girl her age might, so we talk a lot about menstruation in our house, and her nine-year-old brother learns more every month about the trials of puberty for girls. Though they’re both peanuts on their growth charts, my kids aren’t little anymore, and there’s a lot to be said for this era of near self-sufficiency.

Five years ago we talked about having another baby, but my husband was worried about my health after two complicated pregnancies. After I spent a year getting in shape before trying again, our third child came to us in the body of a fully-formed 14-year-old, the daughter of an old friend. She lived with us almost four years before returning home last December, her time with us eating up any reserves of energy we had for another kid; the conversation about babies was off the table.

***

And so, here I am in the parking lot, not ready to go inside. Part of my hesitation is purely physical, as this removal could be pretty uncomfortable. When my doctor mentioned a “crochet hook-like tool” I knew ibuprofen would be on the menu. But there’s something else, too. I should have gotten over my grief back in September, with the vasectomy. But the surgery went so fast I didn’t even get three lines down in my journal before my husband limped back into the waiting room, ice pack down his pants. We were supposed to have a lot of sex over the next few months, to get any live genetic material out of his system while I still had protection. But then I broke my leg and wasn’t much interested in touching anyone, so he was left to his own devices. When he took a sample to the lab three months later, he was deemed sterile. I didn’t grieve then, either. So why can’t I get out of the car?

***

I remember sitting in birthing class in our midwife’s living room before my daughter was born, discussing our fears around childbirth; I wasn’t afraid of pain, or complications for myself or the baby. No, I was afraid I would reach what I deemed the **pinnacle of feminine physicality, and blow it. Not be able to birth a baby through sheer physical prowess, not be able to open myself to the primal force childbirth and push this being out of the center of me. I’ve never understood or strived to obtain the * feminine, but physicality? That’s been a thing. Always pushing to keep up with my big brothers. Finding my currency at recess by being picked with the boys for kickball and Red Rover; I found it easier to join the testosterone gang on their terms, rather than try to decipher the arcane language of flirtation, attractiveness, seduction. I had lots of boy friends but never a boyfriend, until college. And even then, and beyond, I never really figured out the game, finding myself at staff retreats in my twenties, my 5-foot tall self competing with the 6-foot tall dudes with arms as big as my thighs on the high ropes course, impressing them with my prowess, joining them for jocularity and beer in the bar, while my friends flailed and flirted and later bedded them. I never could figure out what I was missing, why I was always alone.

Now I had fallen in love with a man who loved me anyway, and conceived a child with him in the throes of a wild abandon I have only experienced one other time (three and a half years later, the night we conceived our son). I was six months pregnant and fully embracing the biological imperative of procreation; I wanted to push that baby out. But instead my body reacted against her. I got pre-eclampsia, we induced labor to get me well, and the baby’s heartrate fell through the floor, and she came into the world under a surgeon’s knife in a sterile operating room. We were just happy that I was healthy and the baby was here, and we went about the business of becoming parents. In the coming days we would learn our daughter had an extra 21st chromosome, and suddenly everything seemed more important than how she came into the world.

But we would have more kids, I would have another chance to reach this mythical milestone. Hah. Kid number two sat up like a little Buddha in his cozy womb, and try as we might we couldn’t get him to flip over; once again I found myself in an operating room, another surgeon with his knife at my midsection, and our boy was born, butt to the ceiling. This time, I was mad and sad and not distracted by anything but how unfair it was that I had been robbed, again, of the opportunity to prove myself a woman. My sweet boy was suckled on milk with a tinge of rancor, but he made it through; we all survived a few dark months of post-partum disorientation, and in the depths of my heart I planned another chance that never came.

***

So here I sit, a few days from 44 and a tiny bit reluctant to declare that this old body is done generating new life. The last two times I went off birth control, we made a baby in a matter of minutes, but this time I’m becoming fertile again for no reason other than my nostalgia for natural rhythms.

It’s time to go inside. As I unplug my phone, I notice a pink bread tab stuck in the bottom of the cup holder. I pick it up, fiddling it in my fingers, feeling heat rise from my crotch to my cheekbones. Thanks to an off-the-cuff comment in a marriage counseling session, bread tabs became the **token in our sexual economy, and they appear EVERYWHERE. My husband and I came into the marriage with wildly different intimacy needs, and the chasm between us was widened by pregnancy, and this hang up of mine that my body let me down in childbirth. And so, for our tenth anniversary we gave ourselves the gift of marriage counseling. We worked on boundary issues (his), control issues (mine), rejection issues (his), control issues (mine) and tried everything from assigned sex days (**Fucking Tuesday, you choose the inflection) to, somehow, bread tabs. If he handed me one before six pm, I could accept or decline. If I accepted, I was committing to sex that night, even if I just wanted to lie down and sleep. He had the worst timing, handing me a tab the moment I cleared my lap of dogs and kids and inhaled my own space for the first time all day. Other days I would accept, fully intending – wanting — to follow through, and then renege when I was just too tired. I started to throw away every bread tab that came into the house, while he snatched them up from other people’s kitchen counters.

But in the last few months, for the first time in our 15-year relationship, I have initiated intimate encounters almost as often as he has. He blames his vasectomy, convinced it has lowered his libido, a dose of emasculation good for our marriage, not so good for his ego.

I credit the two months I spent in bed recovering from surgery on my broken leg, relinquishing control of the household. All fall, I listened to my husband getting the kids up and out the door every morning, working with the babysitter to keep us fed and cared for, running the show with a strength and grace I had never seen in him – never ever allowed him to show me, with my relentless gathering in of every important and trivial detail of running our home. So we fell into some twisted version of ourselves, a partnership that worked, in its way, but that wasn’t true. Even after three years of marriage counseling, open and honest counseling, where we cut incredible paths back toward each other, there remained an impenetrable thicket when it came to sex, and we surrendered to this as a truth of our marriage.

As I lay there throughout my recovery, incapable of anything more tangible than being present, I watched my husband step up and in, not as a father, because he’s been an incredible dad since day one, but up and in to a confidence and competence that I am ashamed to say I may have been unwilling to see. And it’s sexy.

I smile and put the little pink piece of plastic back in the cup holder, thinking I should hand it to him later. Letting the flush move through me, I climb out of the car and walk across the sunny parking lot into the clinic.

***

As it happens the midwife is wonderful, finds the IUD string with nothing more invasive than an oversized Q-tip, and sends me off with a warning that, with the device removed, I could start bleeding at any time, there’s no way of know where I am in my cycle, and I spot a bit over the next couple days. On Sunday, my husband texts me while I’m out in the studio — ** Black underwear days. Our daughter has started her period again, and he’s digging through the bathroom drawers to find all the blood-absorbing Thinx panties, making sure they’re stocked and clean for her week ahead. I make sure they don’t need me, and step outside to pee in the woods. Whoops! Seems my body has noticed the IUD is gone, and I’ll be bleeding with my girl this week. Better dig out the Diva cup and remind myself how this whole process works. It’s been awhile.

Abby Braithwaite lives in Ridgefield, Washington, where she sometimes writes from a converted shipping container in the woods overlooking the family farm. Her essays on parenting, escape, and disability have been published in the Barton Chronicle, the Washington Post and the Hip Mama blog, as well as a handful of non-profit newsletters. She shares her home with her husband and two children, and whoever else is passing through