Guest Posts, Prader Willi Syndrome

The Pain in My Heart

January 11, 2012

The Pain in My Heart.

My sister talks about having my nephew labeled as “Intellectually Disabled.”

…As the parent of a child with special needs we already fight so many battles at home. Why, why I ask, should we have to fight for our children to get an education? I will never understand.”

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disabled education Prader Willi Syndrome PWS

Jennifer Pastiloff

Jennifer Pastiloff, Beauty Hunter, is a writer and yoga teacher living with her husband in Los Angeles and soon to be son, when she’s not on an airplane. She travels the world with her Manifestation Retreats/Workshops On Being Human- a hybrid of yoga, writing, sharing out loud, and occasionally a dance party, as well as a workshop for young women called "Girl Power: You Are Enough." It's an experience that has been described as NOT "woo-woo,", heart-mending and sometimes messy- just like life. You do not have to be a good yogi, or writer. Just a human being with a body. Jen has been featured on Good Morning America, New York Magazine, CBS News and more for her unique style of teaching. She studied poetry and writing at NYU and Bucknell University and is currently finishing her first book and is represented by Adriann Ranta at Foundry Media. She tweets/instagrams at @jenpastiloff.

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People Magazine says: Jennifer is changing women's lives through her empowerment workshops. Cheryl Strayed says: Jennifer Pastiloff is a conduit of awakenings. Lidia Yuknavitch says: Dear Jen, From you I have learned to alchemize fear with love, to redistribute love through compassion, to enter a room with others. Jen leads her signature Manifestation Workshop: On Being Human all over the world & online. Information about events and workshops can be found at JenniferPastiloff.com. Her memoir was published by Dutton Books in 2019. When she is not traveling she is based in Los Angeles with her husband and son and a cup of coffee. Follow Jen on instagram at @jenpastiloff or Facebook at Jennifer Pastiloff. She is also the creator of @nobullshitmotherhood and @gPowerYouAreEnough on instagram. Her motto to live by is Don’t Be An Asshole. She evens owns the URL.

Angela M Giles is an editor and fellow badass at The Manifest-Station. Angela prides herself on being exactly who she is: An accidental warrior working to make grace and kindness sexy again. She has had her work appear online at The Nervous Breakdown, Literary Mothers, Medium: Human Parts as well as other journals. She has been featured in print at The Healing Muse and is a contributor to Shades of Blue, an anthology on depression and suicide from Seal Press. Angela tweets and is on Instagram as @angela.m.giles, and when inspired updates her blog, Air Hunger (http://airhunger.net). Angela lives in Massachusetts where she conquers the world, one day at a time.

Francesca Louise Grossman is a writer and writing instructor. Her work has been published in The New York Times, Brain, Child Magazine, The Manifest Station, Ed Week, Drunken Boat, Word Riot, and The Huffington Post among others. She runs writing retreats and workshops internationally, and leads an annual intensive workshop at The Harvard Graduate School of Education. She has a BA and MA from Stanford University and a Doctorate from Harvard University in Education. She has written an acclaimed instructional manual: Writing Workshop; How to Create a Culture of Useful Feedback that is used in universities and workshops all over the world. Francesca lives in Newton, MA with her husband and two children and is currently working on a memoir and a novel.

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