Whoa! My sister Rachel Pastiloff is on fire! She flew from Atlanta to assist me in my biggest ever Manifestation Retreat last weekend, led her own for Cedars Sinai Hospital on Monday and today her first blog post is up on Positively Positive. Way to manifest!
Here’s an excerpt:
It isn’t polite to stare, but since you are, let me break it down for you. This is my five-year-old son. He suffers from a rare genetic disorder called Prader Willi Syndrome and autism. Although he may look “normal” to you, I assure you that he is fighting many battles. Before you judge my behavior regarding how I handled my son, you should know this: I only slept for three hours last night. My son is sick, and when that happens, his behavior becomes more than any of you could understand. My husband and I are in the middle of the most difficult financial time of our lives, and I am dealing with my mystery medical issues that seem to elude my doctors. I am human; I am not a robot. I have one child with PWS and autism and a second with hyper-activity and mood dysfunction disorder. I may have looked like a crazy woman to you, but you couldn’t imagine that I have been up handling this since 4:00 a.m. today.
I’m a 30 year old man with Down syndrome who has struggled with the public’s perception that an intellectual disability means that I am dumb and shallow. I am not either of those things, but I do process information more slowly than the rest of you. In fact it has taken me all day to figure out how to respond to your use of the R-word last night.