Browsing Tag

mental-health

Guest Posts, motherhood

Treasure

May 28, 2020
breathe

By Shannon Lange

He arrived in December of 1987, 4 days before my 23rd birthday.

Tufts of downy black hair sticking up all over his perfect-shaped head, arms pin-wheeling, and fists tightly curled; prepared to fight right from the moment of his birth.

Those early moments and hours of watching his every movement and mood in wonder and fear-emotions in tandem. Flowing from one to the other with every breath we both took and knowing deep inside myself that nothing this beautiful and perfect can last forever. Keeping my face close to his, imbibing in the sweet scent of his neck and feeling tears run down my face as I whispered sweet nothings and loving promises into his tiny seashell ears, with the baby fuzz still intact on the tops of them.

🙢

He calls me one morning a few months back, on a work day. That in and of itself, startles me and immediately causes my stomach to clench and my hands to shake a bit as I grab my phone. My sons are of the generation that text primarily. They send funny memes to me as a means of checking in every few days, but often send them with no personal messages at all- the millennial version of Sunday dinner, I guess.

“Mom- I can’t breathe- something is wrong with me and I’m really fucking scared.”

“What do you mean you can’t breathe? What is going on, where are you, are you ok?”

“Mom, my chest feels tight and hurts and my fingers feel numb and tingly and I feel like I’m going crazy. I am sitting in the parking lot of a strip mall by work and I can’t work today. I can’t be alone and I have my girlfriend’s car and I need to pick her up at the airport in a few hours and I don’t know what to do!”

I tell him that I don’t have my own car on this particular day, as I have given it his younger brother to use. I ask if he wants me to call an ambulance, and I listen to his shaky uneven breathing as he tries to decision-make in the thick of whatever is occurring inside of his body and his brain.

“ I will drive to your place- I’ll be there in 20 minutes, Mom- I can’t be alone. I need you.”

I tell him that he can’t possibly drive in the state he is in, that I want him to stay on the phone with me and breathe, while I use my mother-voice to hopefully calm him down.

He hangs up on me halfway through, telling me he is on his way.

I promise myself that I will not call him back within the next 20 minutes, as I know he will be on at least 2 freeways driving towards my home in the burbs, and that if I call him, he WILL answer the call.

🙢

We are off to the Pediatrician’s office for the 4th time within a 2 month period between his 2nd and 3rd birthdays. He has turned into a daredevil and a constant whirling dervish of energy and impulsivity. He is prone to wildly jumping off furniture and picnic tables and the trunks of people’s cars and from branches of trees that should be light years away from his reach or climbing skills.

His first concussion is still 3 years in his future; his second 4 years ahead.

The pediatrician assesses him for lumps and bumps, bruises and contusions, and then suggests I keep a better eye on him and to hide anything cape-like in appearance, as these mishaps have a common denominator- the capes he ties around his neck. Capes made of tea towels primarily, which I tie or pin on autopilot for him when he brings them to me. I am distracted by his younger brother’s colicky wails during these months, and feel gratitude that he can amuse himself so well in his imaginary pleasures of being a superhero.

I cry tears of relief and shame all the way home from those visits to the pediatrician’s office with my son safely strapped into his car seat in the back of the car. He babbles non-stop in the car with me, telling me about Aladdin and Jafar, Littlefoot and Sara, Falkor and Bastion; also the old man next door that he talks to through the fence in the backyard.

🙢

The year he is 13, the car I am driving is hit by a train and the memory of the scent of him as an infant swirls around me in the wreckage. I am transported back to the promises I made him, and the whispering of sweet nothings into his perfect seashell ears. I babble to myself incoherently and remind myself to breathe as I slither my broken body out the shattered window.

The memory of his scent and the promises made spur me toward survival.

🙢

Three Christmases ago, he is with me in my home. He works with children and youth who are taken into care due to neglect or abuses too horrific to share. He tells me he is on call and will need to step out of the room to privacy if the cell phone he’s holding rings. It rings over and over that day, a constant background sound to the day’s festivities. He is absent more than he is present that day. Even when he is in the rooms with us all, he is not there. His brow is furrowed and he is deep within himself.

He leaves his plate of food mostly untouched and I watch the gravy on the plate in front of his empty chair turn to a gelatinous sludge, while sipping wine.

I make the mistake of commenting that he maybe should have skipped coming, as he has been so preoccupied and absent most of the day- that he couldn’t have possibly enjoyed the gathering.

“Mom, there is an infant that is one day old that is going to be taken away from its mother this evening. I have been on the phone with police and child services and coworkers and hospital social workers, coordinating the details and logistics. I am sorry I ruined your holiday.”

I sit in the chair after he leaves, and feel tears of shame and regret snake their way down my face in the dark like they did all those years ago.

🙢

The year he is 7, he ends up with strep infection and goes into a delirium state. I pull him into the bed beside me, and feel the burning heat coming from within his thin body. I rock him a bit, feeling his rigid limbs slowly relax against the softness of my stomach.  He eventually drifts off into fever dreams and upon awakening, tells me stories of pirate ships and buried treasures and makes me pinky swear I will always remember the location of the buried treasures. He says he will not remember it when we really need it when the bad times come.

He tells me he can save me with the treasures he will bring me.

🙢

The summer of his 13th year, while I recuperate from the accident, he works full time landscaping. We are living in an apartment, with no air conditioning, in the midst of a heat wave. My mother far away has taken my younger son for the summer; I am unable to care for him properly in my broken state.

He goes to work at 6 in the morning and doesn’t come home until the evening, working long hours in the heat like a man, coming home with brown skin and hair bleached by the hot sun.

He asks for my bank card and runs across the street to buy hot dogs or pizza pops or bacon- anything he can find at the convenience store that will feed us both for dinner.

He never complains, cooks for us both and then falls into his bed to rest for the next day.

He tells me that we need to talk about how often I am taking the pain pills and we make a plan together for me to wean myself off of them safely.

I begin to heal.

🙢

He arrives at my home the day of his breakdown and I sit with him.

I bring him cool water and stroke his hair and encourage him to breathe, while I strap my blood pressure cuff to his arm. I watch the numbers on the machine go higher and higher and higher, but tell him in a calm voice that everything will be ok, and just breathe.

My eyes fill with tears he cannot see as the numbers on the machine blur into the ages that my father and my brother died from heart attacks.

He worries about letting the children and his coworkers down and I remind him to breathe.

He worries about picking his girlfriend up at the airport in 3 more hours and I remind him to breathe.

He apologizes for scaring me and bringing his troubles my way and I notice that we are breathing together in perfect sync – slow life-sustaining breaths together.

I take him to my doctor across the street from my home and he tells him it is anxiety and lack of sleep and that he will be ok.

He sits with us both and reassures us that this too shall pass.

🙢

The year he is 15, we have a stupid argument over him not cleaning up after himself.

He is a man now physically and feeling ten feet tall and bulletproof as only teenaged boys can.

He has started to lip me back when I scold him about things and I sometimes search desperately to see even a trace of my baby in his angular features. I need it to remind myself that this isn’t some random male yelling in my house. I am mostly angry that year, for a variety of reasons, most of them having nothing to do with him or his brother. I am in school trying to better myself and my earning potential for all of us, and worrying constantly about keeping food in the house for my sons.

I decide to employ the silent treatment on him, and I go 24 hours or more without speaking to him.

I walk past him in the hall and the kitchen and do not respond to him when he speaks to me.

I am on the computer in the spare room when he walks in and approaches me.

It feels like a Mexican stand-off- him looking tearfully into my eyes and me looking back at him coldly.

“Mom, I can’t take you not speaking to me- it reminds me of when you had your accident and everyone said you were going to die. This is what it would have felt like living without you.”

I took him in my arms on that day and held on for dear life, thinking about the treasures he told me about all those years ago, how he knew he would save me someday, how it all came to pass.

Shannon Lange is an emerging writer and who has worked in healthcare for the last 25 years. She is also the mother of two adult sons, one a film maker, and the other a musician. Shannon and her family value creativity in its many forms, and her dream is to be able to write full time. 

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Guest Posts, Self Care

Madame Defarge in the age of Corona

March 29, 2020
knitting

By Caroline Leavitt

Years ago, in 2004, while my husband Jeff and I were sitting watching the election returns, I was stress knitting in terror. That evening, I made twelve (I’m not kidding) fingerless mitts that I, always the writer, embroidered with the words Hope on the left hand, Love on the right.

It didn’t help. Bush won. Crying, I wrapped up all those mitts and sent them to the friends I had made them for with a note: Maybe next time will be better.

Next time isn’t better. The next election, a day before I am due to go out on Book Tour, for a new novel, Cruel Beautiful World,  about how the world drastically changed from the late sixties to the early seventies, my world drastically changes as well. Trump wins. I get on a plane and people are crying. I have two events, ticketed, $70 a pop and five people show up for the first, and only three for the second.

I keep writing. I keep hoping. I have a new novel coming out in August and I sold the one after that, too, though on a partial, so I have to write it. And as I hoped, this year is something very different, but not in a good way. Trump terror seeps into everything we hear and see and do. People worry that he might stop the elections, that he might make himself Emperor for life, which given his erratic sociopathic nature, is not implausible or impossible. A second term would be a disaster.

And then in the midst of this, sneaking in on little virus feet, is Corona.

I live in the NYC area, and things are quietly surreal. On the subway, I actually can hear the usually garbled announcement which urges everyone to wash their hands, to cough into their elbows, to not panic. Don’t panic. Don’t Panic. Don’t Panic.

Panic.

Of course we all do. A man coughing in the subway is glared at. More and more people are wearing masks. I try not to touch the poles, to keep my hands away from my face. For the first time in years, I am not biting my nails. Stores are emptying out of goods and people. Things are being cancelled. Concerts and plays we had tickets for. A big event I had for my novel coming out in August. Gone. The Poets & Writers 50th anniversary extravaganza. Gone. Publishing houses are working at home. Even my cognitive therapist tells me we can do sessions by Face Time, since she has just come back from a vacation in Germany.

I’m so anxious I get a refill of Klonopin and my therapist tells me that small motor activity might be a good idea, even if it is just tapping my knees. Is there something I can do, she asks. “I can knit,” I tell her.

I haven’t knit it years, not since my first terrible marriage a million years ago, when I designed a sweater for him with dinosaurs feeding on vegetation, one I scissored up when I found out he was cheating on me. I hadn’t knit since. I was writing all the time, so why would I want to relax by using my fingers again? Didn’t they deserve a rest? But now, everything is bigger and seems more fraught with danger. I tell myself I will just straight knit, just to have something to do, that this is not about actually making anything, but just soothing my nerves.

I make my first sweaters, just two rectangles and two tubes, and when it is done, it has so many mistakes, it makes me wince. But I put it on, like a talisman, like a lucky sweater, and it’s warm, cozy and well, perfect. I did something concrete, I tell myself. That’s something.

I cannot stop knitting. I buy more yarn, more needles. Every night, when my husband Jeff and I sit to watch films, there is the click of knitting. “I don’t know what I’m doing,” I tell Jeff and he takes my hand. “I bet you do,” he says. I think about Madame Defarge from A Tale of Two Cities. She was like one of the Fates in Greek myth. She never stopped knitting, stitching in the names of the people she wanted killed, creating her own kind of revolution with yarn.

My second sweater, soft, glossy gray, is absurdly perfect and I am going to wear it to a reading, but the reading gets cancelled. All that day, I write my novel, thinking about the evening when I wouldn’t have to think, when I can just knit and turn off the churning in my mind. I think about how knitting, like a novel, has a structure, a spine that has to hold things together, how every stitch can tell a kind of story—that one there that is twisted is when I heard Trump say on the news not to worry. That one where I dropped a stitch is when I was stress eating. When my niece Hillary, who is supposed to come stay with us, along with her husband and two kids, cancels because of the virus, I go online and order more yarn, a deep dark blue, to knit a pullover for her the one way I can be with her.

The day I start that sweater, and WHO announces we have a pandemic. Italy is in lockdown. The first big event for my novel, The Texas Library Association in Houston, is cancelled. The Virginia Festival of the Book is cancelled. The Poets & Writers 50th Anniversary is cancelled. Colleges are holding virtual classes.

I sit with Jeff watching Sorry Wrong Number with a particularly hysterical Barbara Stanwyck, who begins to have an inkling she’s about to be murdered. I am knitting and knitting and knitting through the night, my eyes on the screen. It isn’t until I am done for the evening, that I look down at my work. To my shock, the garment has lost its structure. It isn’t totally blue the way it is supposed to be. I must have picked up the wrong yarn, because the second half of the back of the sweater is now deep green.

At first, I’m pissed. I wanted to control this. Rip it out like errant pages that aren’t working. The way this is supposed to go is not thinking, just knitting. Plus, the thought of ripping out all that work makes me ill. I’m terrible at taking out stitches and picking them back up and I know if I even try, there will be a stunning number of holes.

So I leave it. And the next day, I keep knitting, picking up other colors, making something that I don’t even think about having control over, that I can’t possibly know how it might resolve. As I knit,  I look down every once in a while, surprised, and sometimes pleased. The steady rhythm is so soothing, so hypnotic. I think about my novel, the characters so real I know what color sweaters I could knit for them, and that makes me think a bit about plot. I think about my mom, who died, two years ago, who I wish I could call to make sure she’s all right. I think about the sweater I’d make for her, deep purple, her favorite color, a sweater she’ll never get to wear. I think about my sister, who is estranged from our family and how I’d like to make her a purple sweater, too. I think about our son Max, who is in Brooklyn, who I get to see and hug. I move closer on the couch to Jeff, the click of my needles like a kind of Morse code. I love you. It’s going to be all right.

And so I keep knitting for other people. Pullovers that will hug them because I can’t anymore, at least not without a mask. Despite myself, I am getting better and better. Knit. Knit. Knit. I’ve come to realize that this is how I give up my desperation to control the narrative and the fear I’m feeling. Knitting a sweater isn’t writing a novel, not in any sense. We can’t know how the world is going to go with the virus, we cannot know what is going to happen with Trump and his cronies or with our planet that is falling apart. We breathe in and we breathe out. We wash our hands and cover our coughs and I keep knitting.

I buy more yarn. It doesn’t matter what color, just that I have enough for four more sweaters. Just so I can see the pile of yarn, provisions against terrible times and anxious thoughts. Despite the fierce intensity of my knitting, I’m no Madame Defarge, purling my way to revenge. This is not A Tale of Two Cities as much as it is a tale of one world in crisis. Instead, every night, this is how I knit connections, this is how I knit away the terror, one stitch at a time.

Caroline Leavitt is the New York Times Bestselling author of Pictures of You and Is This Tomorrow. Her new book, With or Without You set for release in August and can be ordered here.  Her essays and stories have appeared in Real Simple, The Millions, and The New York Times. Visit her at @leavittnovelist on Twitter, on Facebook, and at Carolineleavitt.com

 

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Guest Posts, Mental Health

Walk This Way

December 17, 2019
walk

By Sarah Boon

If you’d told me last summer that I’d be training for a half-marathon this summer, I would have laughed hard and loud. Not because it was funny, per se, but because of my mental illness and the crippling grip it has on me.

In 2014, my psychiatrist diagnosed me with bipolar disorder and generalized anxiety disorder. The former is when your mood swings from euphoric highs during which you feel invincible, to deep lows during which you feel the world is going to end – something I realized I’d definitely been experiencing over the past five years. The latter is an underlying condition that I recognized as soon as he diagnosed it: I have been anxious since I was a child, always worried that something bad is going to happen or that I’ve done something wrong, and it’s coloured my whole life. He explained that this combination of illnesses is one of the most difficult to treat, adding that cognitive decline, or changes in your ability to think, is common among people with bipolar disorder.

I tried over a dozen different drugs to manage my illness. One required that I stay close to the bathroom, another sent me to the ER with a migraine so terrible I thought my head would explode. Some medications knocked me out to sleep in minutes, while others led to nausea and vomiting. I got used to experiencing a range of unpleasant side effects, until we finally found a mix of medications that made life a little bit more manageable.

All this is to say that I’ve spent the past seven years being held hostage by my illness. It tells me when I need extra sleep, when I need to avoid groups of people, when I should adjust my medications and, if there’s anything left, when I’m able to be sort of normal. It’s not clear on which days I’ll feel okay versus days when I feel terrible, and there’s no easy way to correlate certain activities or events with a specific emotional or mental response. I still have highs and lows, despite my medication being delicately balanced in an attempt to avoid these swings.

My illness dictates how my days and weeks go, and I often resent it for that. If, as Annie Dillard said, “how we spend our days is how we spend our lives,” then my life is a combination of excess sleeping and trying to maintain a stable mood, like sitting on a children’s seesaw and trying to hold steady in the middle. This is definitely not the life I wanted or expected to live.

My illness has also made me less than active, and that – combined with the unfortunate but common side effect of the medications – has led to significant weight gain and reduced fitness. I haven’t been able to commit to regular exercise or joining a fitness club because my life is so unpredictable. Physical deterioration is not discussed much in mental health circles or stories. As Virginia Woolf writes in On Being Ill, we tend to focus only on the mind, “the thoughts that come to it; its noble plans; how it has civilised the universe. [We ignore] the body in the philosopher’s turret…Those great wars which it wages by itself…against the oncome of melancholia, are neglected.” But having a body you don’t like is just one more thing that feeds depression.

Then last January, something changed. I experienced one of the highest high moods of my life: so high that I had to increase my regular medications and take copious amounts of a new medication to manage it. I felt like I could do anything. I wasn’t sleeping. I was writing essays in my head at all hours of the day. I was purchasing all sorts of things online. I was pitching freelance pieces left, right, and centre. I was back to my former state of juggling more balls than I should have been able to manage. And I loved it.

When you’re used to being depressed, submerged under an immovable weight that just can’t be lifted, a bipolar high feels like a gift, even though you know it’s going to end badly and have serious impacts on your brain function and mood. Indeed, I did a series of cognitive competency tests shortly after one of my earlier high episodes to see if I could go back to work, and I failed several of them – likely due to a combination of cognitive decline and mental fuzziness caused by the medication.

One good thing came from this high, however – I decided that I needed to be more in charge of my life. I wanted a sense of personal agency, something I’d been missing as I was tossed around by the vagaries of my illness and the side effects of the medication. I wanted goals, and a series of steps to reach those goals – steps I’d chosen myself to track my progress. I wanted to be more fit, to be active like I used to be, when I hiked and skied in the Rockies, swam 3,000-4,000 metres every other day, and lifted weights every second day.

What did “taking charge of my life” mean in practice? It meant walking the trails around my house again, something I’d done when we first moved in but dropped during a depressive phase. It meant committing to writing a book about my field experiences as a research scientist. It meant deciding to do the Lake-to-Lake Marathon.

I first heard about the Lake-to-Lake Marathon last year and was intrigued. It follows a gravel railbed trail for 42 kilometres from Shawnigan Lake to Lake Cowichan on British Columbia’s Vancouver Island, crossing several old train trestles along the way. I liked the idea of walking on gravel rather than asphalt, and checking out the view from each of the different trestles. I didn’t think about the training so much as I envisioned a lovely walk in the woods and crossing the finish line.

People with bipolar disorder are notorious for promising the world during a high phase. We have a tendency to take on more than we can manage, and that impulse collides with the inability to do it, leaving us holding the pieces and wondering what went wrong. During that high earlier this year, I promised several writing assignments and ended up having to cancel one and not do as good a job as I’d planned for another, which made me feel like a terrible writer. But I never lost that idea of wanting to walk the marathon.

Some people would have happily chosen a 10-kilometre race, but I wanted to challenge myself with something longer and more difficult, something that would allow me to enhance my fitness levels. I wanted to force my body to listen to me and do as I asked, to push me strongly over the finish line. As my high mood declined, however, I realized that there was no way I could do a full marathon. So I switched my sights to the half-marathon.

In June I got serious about training and started walking longer distances than my usual 3-4 kilometres. My plan was to just walk farther each day until I hit close to marathon length. My longest walk as of the middle of July was 14 km. But walking is time-consuming, and it’s difficult to fit a 2.5 hr walk into an already limited day. I’m up at 8.30 am and back in bed at 10 pm, with a 2.5 hr nap in the afternoon. Within those hours I not only have to walk, but I also have to eat, wrangle dogs, do house and garden chores, run errands, and keep up my writing – especially now that I’m working on a book.

What happens if I have a bad day (or week) and have to stay in bed? Like the day after that 14 km walk, when reality came back to bite me and I had to sleep all day? It’s made me realize that my training has to take into account how my body and mind feel, that I have to consider not what other people do, but what I’m able to do. I can’t afford to re-injure my knee, or to draw too deeply on my limited energy stores while training. I have to walk at my own pace, not the pace set by the faster walkers on the course.

Thank goodness I’ve found a half-marathon training program that allows for two days off a week, and includes only one long walk a week (like my 14 kilometre walk), with shorter walks at faster speeds or a session of repeated hill climbs during the rest of the week. Suddenly things seem much more manageable – I can fit most of my daily walks into an hour or two, and I can recharge on the days off. This also allows me to manage bad days – I can just shift my days off. I can also use the extra time for writing.

I’m proud of myself for sticking with the training so far, and am starting to see some benefits like reduced resting heart rate and some weight loss. The half-marathon itself will be tough, but it’s almost tougher to make sure I get out at least five times a week to train. I enjoy my training sessions, though. Walking gives me a way of thinking through life issues, plus writing and book ideas. It’s also a way to zone out and let my feet do the work. As Antonia Malchik explains in her book, A Walking Life, walking helps re-centre ourselves in our body and in society, heal hurts and organize thoughts, and remember the past and aim for the future. That’s exactly what I need to help me balance both my mental and physical health, and is similar to advice I’ve read from other prolific walkers.

I’ll never get rid of my illness, but I can do my best to take charge of it and work within its physical and mental limitations, and to focus on the positives as much as possible. As Anne Giardini writes, “The days cannot be stretched, but they can be shaped.” I can shape my days around my walking goals, with the understanding that they may need to be modified at times, depending on how I’m feeling. I can walk that Lake-to-Lake Half-Marathon. Crossing the finish line after having committed to all that training will be the best gift I could give myself.

Sarah Boon is a Vancouver Island-based writer whose work has appeared in The Rumpus, Longreads, Hippocampus, The Millions, Hakai Magazine, Literary Hub, Science, and Nature. She is currently writing a book about her field research adventures in remote locations. Sarah Boon is a Vancouver Island-based writer whose work has appeared in The Rumpus, Longreads, Hippocampus, The Millions, Hakai Magazine, Literary Hub, Science, and Nature. She is currently writing a book about her field research adventures in remote locations. Find her on Twitter at @SnowHydro

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Addiction, Grief, Guest Posts

What I Wanted To Say

November 22, 2019
need

By Lennlee Keep

We needed to start doing the things that separate days from one another. I knew my son Dashiell and I should probably start eating again. We only pretended to sleep. We acted like we knew what day of the week it was. It had been 10 days since my ex-husband Josh had been found dead in his apartment in Austin, Texas. It had hit us like a bomb that had not stopped exploding.

Dash and I flew from our new home in Berkeley to Austin to deal with the business of his father’s death. Dash said goodbye by contributing to his dad’s eulogy and letting a balloon go at the memorial. I let Josh go by packing his clothes and photographs and books, throwing away bottles, and solving the 1,000 problems he had left behind. In the process I tore myself to pieces like I was destroying evidence.

When it was all finished Dash and I returned to our new life in California. It was a daily struggle to mask the fact that I was raw and collapsing. But I had to function and carve a routine out of a loose collection of hours and dust.

I had to register my son for the new middle school he was starting the next morning.

***

I walked into the school office. A paper sign with the word REGISTRATION was taped next to an open door. A tall, thin, woman sat typing at her desk. I assumed she was in charge. She looked bored and regal. The entire room was lit only by a lamp on her desk. I felt like I was hiring a gumshoe to do some dirty work instead of getting my 6th

grader into the right math class. She didn’t acknowledge my presence, so I walked in and stood in front of her.

“Hi, I need to register my son for school.” I was trying to come across as friendly and competent but my voice sounded forced and tight. That, combined with my exhausted but smiling face just made me look crazy.

“I need your letter,” she said while staring intently at her screen. Her fingers flew across the keyboard.

“I don’t have a letter. Wait, um, I don’t think I do.” I nervously flipped through the pages in my hands. I had papers. Would papers work? I didn’t remember getting any letter. But I didn’t remember a lot of things.

She looked up me for the first time. “I need the letter we sent you about your school assignment.” She said this like she had said it to a hundred other stupid, irritating, letterless parents before me.

“I am sorry,” I said, “but I have no idea where the letter is. My son’s father died unexpectedly ten days ago and we just got back from his funeral. We moved here two weeks ago. Everything is a mess. Can you help me?”

“The letter was sent two weeks ago,” she said. She really punched that two weeks as if to drive home that this was something that could have been dealt with long before tragedy struck. Dead dad or no, I should have my letter. She rolled her eyes and pushed a copy of someone else’s letter across her desk to me.

I studied the letter and then said in a voice that sounded less feeble, “I will go look for it right now. I think I can find it.”

What I wanted to say was, I haven’t slept more than nine hours in five days.

***

I went home and looked everywhere. In the mess of our move tax returns were buried under towels and yo-yo’s, garbage cans stood empty next to boxes that overflowed with trash, but I found the letter. Small wins like this made me feel like the tide was turning, like this straw could still be spun into gold. It was a trick that I kept falling for.

I went back to the office and handed over the letter. I felt accomplished because I had done this one, right thing for my son. All of his other needs seemed immense and impossible but I could do this. He was twelve, he was starting a new school two days after his fathers memorial. He was anxiety and tears in skinny jeans and a sweatshirt. I could barely save myself and I had no idea how to handle him or help. I couldn’t reach him and I couldn’t honestly say I was trying. A good mother would be holding and reassuring her broken child, spending every waking moment trying to heal this deep wound. I hid in my room and stared at walls. Registering him for school proved I was still his mother. I had found the letter and he would have a school and that was proof that I could do something.

The admin took the letter from my hand and continued punishing her keyboard.

Shaking her head she said, “Nope. He’s been dropped from our rolls. You were supposed to register him last week.” She seemed disgusted by me. I was disgusted by me. “You need to go to the district and get your new assignment.”

This school and its proximity to the house and to the only kid Dash knew in the Bay Area was what I had built our entire move upon. Without this school every single thing would unravel.

My eyes welled with tears that didn’t roll down my cheeks. Sometimes crying feels good. This felt stupid and not grown up. I sucked them back into my eyes where they stayed and burned.

“Look,” I said, “I know your job is hard and it’s the first day of school and you are swamped, but is there anything you can do?”

What I wanted to say was, It’s really hard for me to deal with people right now. I spend a lot of time standing in the shower, talking to the tiles, practicing how to have interactions like this one so I don’t freak people out or start crying. How am I doing?

But instead I pleaded with her and again told her my story. My son’s father had died. I would have been here to register Dash for school, but his dad had died. And he was dead. I tried to pour words all over the problem to make her understand.

“I can’t help you,” she said. “You need to go to downtown to the district office and get a pink piece of paper.”

What I wanted to say was, It took him years to die overnight. He was an alcoholic. Drank himself to death at 47. I mean we don’t know for sure if it was alcohol poisoning, we won’t know that until we get the toxicology back. Toxicology! I know, right? I have a homicide detective assigned to me and everything. Her name is Denise and she came to his memorial. Isn’t that nice? I had to call the Medical Examiner and their hold music is awful. I don’t know how to live the next hour let alone the rest of my life ha ha ha ha.

I wanted to tell her all of it, just bleed it out all over her stupid tappy keyboard.

I wanted to say, Last night, instead of sleeping, I spent two hours screaming into different pillows and recording the sound on my phone. I was trying to find the one that muffled my sobs the best. Bed pillows were just too fluffy. A red felt accent pillow from the couch was the one that absorbed the most sound. I had to do this because my son asked me if I could please stop crying because it made him “uncomfortable.”

But I couldn’t say that. Because normal people don’t say things like that or do things like that. We don’t gut ourselves in front of strangers to show them what we had for lunch. We don’t do it because it’s shocking and gross but also because no one really cares what we had for lunch anyway.

All those words stayed trapped in my head and I only squeaked out a small “please.”

She resumed her typing. “I can’t help you. You need to go to the district and get a pink piece of paper.”

I wanted to say, I don’t think I want to die, but I am not sure I want to live either. How do I figure out if I want to live or die? Is there a Buzzfeed quiz or something because I can say with zero emotion that from here it looks like a toss up.

Instead I said, “Is there nothing else you can do for me?”

She turned her attention back to her screen and said, “Not without the pink piece of paper.”

I got into my filthy car to go downtown. It barely had any gas and my phone was almost dead. But driving to the school district office felt normal and that was rare. I thought if I did normal things that life would fall back into place. I would walk into a store and buy something and think, OK, this is a thing I did before what I am doing now. Look! I went to the grocery store and bought blueberries and detergent. Because I do things like this and this is what everything used to feel like.

And I would get home and discover that I had bought dishwasher pods instead of the laundry pods I needed and I would drop my head against the counter and sob and collapse under the notion that this will never stop. That these failures will be permanent and excruciating. From here on out I will get it all wrong and until the grave, I will have sparkling dishes and filthy socks.

***

As I drove to the district office I kept thinking that if Josh’s death had lost us the school the domino effect on my life was endless. I hadn’t registered Dash because I wasn’t here because Josh died. His drinking had laid waste to countless evenings, holidays, and birthdays, and our marriage. His dead hands reached out and threw cheap white wine into my face and all over my plan and our new life. Death by definition should stop you in your tracks. Josh was SUPPOSED TO NOT BE DEAD. He wasn’t supposed to be lying in a metal drawer waiting for the coroner to release his body. He was supposed to have gotten sober.

His death had ripped the tourniquet off the fury I had held back for years. Every word I could never shout at him bled from me in rivers. In my head, I beat him with words of rage, pummeled him to a pulp with my hate. But every once and a while the light of a sweet memory swept the darkness away. I remembered every flower he ever bought me. I repeated the Dorothy Parker poem that I had recited on the corner of Chattanooga and Church Street in San Francisco on the night that we met. I replayed the scene over and over. He kneels down on the ground and kisses my hand and says, “That’s for knowing who Dorothy Parker is.” I wanted to tell him I am sorry that I got mad and stayed that way. And I wanted to scream and scream because it was us and it was our story and important and how could it just not matter now?

***

In the district building several parents waited in the hallway for a change of school, word of a new teacher or a last minute immunization record. I was told to go in the office and get a number. The woman behind the counter looked up. “What do you need?”

I said, “My son’s father died unexpectedly, so we missed registration at our assigned school last week. I need to get back into that school.” I thought throwing “unexpectedly” in there would make her understand that this wasn’t cancer or a heart attack. There was no final, sweet handholding, morphine-dripping, hospital-jello-eating goodbye. This was a hunting knife splitting a sheet. It was an upending.

She stared at me blankly.

“I guess I need a number?” I said. As she walked across the room to the pile of numbers on her desk, I thought: ‘Take a number, any number!’

How about 0.0? That’s what he blew on the Breathalyzer in my kitchen before he was allowed to take Dash to dinner. It was the last time I saw him alive.

How about 12? Dashiell’s age when I sat him down on a Saturday morning to tell him his dad had died.

Or take 13, the number of years we were married.

Or 20, the number of years we were together.

“Here,” she said as she pushed a card across the counter. “Number 21.”

21! Our shared birthdate. Him April 21st; me November 21st. 21 was our lucky number.

***

A young woman walked through the fifteen seated parents checking numbers, following up with their issues. “You need this form. I need your ID.”

Finally, she called, “Number 21?”

I raised my hand.

“What do you need?”

What did I need? I needed for this to matter to someone other than me and if I had to burn the world to gain some camaraderie in my misery, so be it. My friendly voice was gone, replaced by a serious tone, that was loud enough for everyone to hear.

“Yes. You can help me. My 12-year old son’s father died last week and we missed registration because we were burying him. I was told we were dropped from the school we were assigned to, but that if I want to get in, I need a pink piece of paper. Can you give me the pink paper? I need to get my son back into the school we were assigned to. I need to talk to someone who can give me the pink paper.”

The other parents in the hallway turned to look. I officially had the worst problem in the room, and unless they were willing to produce a corpse themselves, I was the victor.

The woman said, “I am so sorry. I’ll be right back.”

I said, “Thank you” and fidgeted with the useless papers in my hands.

What I wanted to say, to the other parents who were so uncomfortable looking at me, was, If you think that makes you squirm, you have no idea the tidal wave I am holding back. I’m not very good at impressions, but Josh’s father made the strangest animal noise when I called him in London to tell him his son had died. Parents aren’t supposed to ever hear things like that and I am definitely not the person to say them. I want to show you a map of the stars I stare at every night while I scream into the red pillow. I am the woman who cries on BART every day. Can you please give me recipes for food that won’t turn into sand in my mouth? I have forgotten a lot of things, but I will always remember what it felt like scrubbing my ex’s dried brown blood out of the stone white sink in his apartment. I demand an apology and I am deeply sorry. He can never forgive me, but can my son? Can you? If you can’t grant me me absolution, then just give me a fucking break.

Instead I stared at my hands. Almost as if on cue, everyone turned away and resumed their conversations.

I felt bad about telling people what happened to him and to us, almost embarrassed. Like it’s attention seeking. “Look at me and my sadness! Feel for me!”

She returned with the pink paper, and said, “I am so sorry he passed. Please accept my condolences.”

I think “passed” is a weird euphemism for death. As if death swings by and picks you up in some quiet luxury sedan and ferries you away from this world. Driving away, you pass your life and your family. You pass. But death isn’t a smooth ride and a leather interior. Death is a stick shift with a bad transmission. Death has teeth and purpose and every intention of sticking as close to you as it can for as long as it can. Death picks up its passenger, but it also takes everyone who loved that person and ties them tightly to the bumper, like cans on a newlyweds car. Sure they will eventually fall off, but brother, it’s gonna take a lot of miles.

Josh’s death had separated him from us, but not us from him, and now that we were back in California I realized that this feeling was not going anywhere. Registering Dash for 6th grade, opening the mail, talking to people he knew. It was all part of the same. They were all part of this thing. His death would keep stirring up the past and I had every confidence it was set to devour the future. Because death stays. Death rides the clutch.

Lennlee Keep is a nonfiction writer, filmmaker, storyteller and mother of a teenager. Her writing has appeared in The Rumpus, The Southeast Review, ESME and The Fix. Her films have been shown on PBS, A&E and the BBC. The ex-wife of a dead guy, she talks about grief and dying more than most people are comfortable with. She is much funnier than all of the above might lead you to believe. This piece was originally published in the Southeast Review.

Upcoming events with Jen

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THE ALEKSANDER SCHOLARSHIP FUND

Guest Posts, Mental Health

A Horse Brought Me Back To Life

April 26, 2019
horse

By Sarah Van Sciver

As I exit my car I notice the unseasonable warmth on this early February day at the farm. I don my black and white wool Persian hat over the two braids in my hair but decide I can ditch my coat and get away with wearing my hooded, gray fleece.  The welcomed warmth mirrors the inner thawing that has begun to occur within me during the past couple of weeks. The urge to keep painful emotions tamped down still remains but just as the winter clouds make way for the sun I, too, feel a small opening.

For the past five months, I have stayed committed to coming to a farm once a week where I have been participating in Equine Facilitated Psychotherapy, a type of therapy where horses play an essential role in healing trauma. Most of these days I’ve wanted to quit and run as far as I can to escape the frightening sensations that have finally begun to loosen their hold in my body. Like placing a healing salve on an open wound, the process has been painful; bringing to light what caused the pain in the first place.

Throughout the experience, bitter and painful as it’s been, I’ve come to realize that what I fear the most is also what I crave the most: touch and true connection. As if I had a blindfold over my eyes most of my life, I never realized the constant feelings of isolation, loneliness and disconnection I experienced were due to living with unprocessed and extensive trauma. Somehow through some kind of magic, the horses have brought me face to face with this pain while simultaneously healing the broken places inside of me. Continue Reading…

Autism, Guest Posts

Don’t Panic, I’m Only Autistic; or Welcome to Autism Acceptance Month

April 16, 2019
autism

By Susanna Donato

Just over a year ago, on March 23, I was diagnosed with autism. By now, I’ve shared that information with many people in my life, including family, friends, and colleagues. Some of them, when I’ve explained, have said something along the lines of, “Oh! Yeah, you’re a little different, but I thought that was just a Susanna thing!”

Still, even though I don’t think “coming out” as autistic—sharing what’s essentially a medical diagnosis—is an obligation, I’m starting to feel a little lily-livered about posting resources and information and commenting on other people’s posts without sharing the reason I’m doing so or my perspective.

I’ve been reluctant to “go public” mainly because I don’t want people to judge me. When I told one friend, he took a step back and asked if I was OK.

I’m OK. I’m definitely OK. Autism isn’t contagious. It isn’t a deteriorating condition. And there are so many people like me. While the stereotype of autism may still be a boy with verbal and/or intellectual challenges—and don’t get me wrong, those individuals absolutely are present and deserve the same rights as anyone!—half or more have IQs that are average to above average, sometimes way above average. (Though non-speaking doesn’t mean non-communicative.) Lots of us are women, and a bunch are nonbinary or identify in other ways. And all of us, God willing, grow up and become adults. Continue Reading…

depression, Guest Posts

When Depression Gets Too Heavy

November 5, 2018
depression

CW: This essay discusses ideation and/or suicide. If you or someone you know needs immediate help, please call 911. You can also call the National Suicide Prevention Lifeline at: 1-800-273-TALK (8255) or contact the Crisis Text Line by texting HOME to 741741. The world needs you.

By Kari O’Driscoll

There’s a reason darkness is used as a metaphor for depression. In my worst moments, I felt as though there was a black spot in my head spreading like an oil spill, creeping outward, sinking in to the valleys and crevices of my brain and obliterating any possibility of light permeating. Perhaps the most shocking thing about it was how tired it made me. Never had I known that depression was so exhausting.

There is a television advertisement for an antidepressant medication whose tagline is “Depression Hurts.” The first time I saw it I felt right, like the ad writers had seen me in my natural habitat and sussed out something nobody else had noticed. I remember curling myself into a fetal position, rocking back and forth, feeling a weight and a soreness in my ribs – between them, an accordioning of my chest around my heart and lungs. My limbs ached as though I’d just climbed 4000 steps, my head hung low with fatigue. A fog settled over the top half of my brain that made focusing a chore. Depression was heavy. It was effort. It was draining, physically, mentally and spiritually. Continue Reading…

Guest Posts, Mental Health

Dots And Holes

August 21, 2018
dots

By Avery Guess

  1. Morse Code

Morse Code is made up of dots and dashes, or more accurately, dits and dahs, but I don’t know anyone who uses the latter. I never could listen to Morse Code and understand anything beyond the standard S.O.S., and even then, I’d worry that I hadn’t heard the message correctly. My first name, Avery, is made up of a total of 8 dots and 6 dashes. My last name, Guess, 10 dots and 3 dashes. Anxiety has 8 dots and 8 dashes. Depression contains a whopping 17 dots and only 8 dashes. Bipolar disorder, 27 dots and 16 dashes. Except in the case of anxiety, the dots prevail. There is no escaping them.

  1. “Repetitive Vision”

I saw Yayoi Kusama’s “Infinity Room” titled “Repetitive Vision” in Pittsburgh’s Mattress Factory in August 2014 while visiting Katie, a friend I’d met on Facebook a few years before. If I had heard of Yayoi Kusama prior to seeing her work that day, it was only in passing. Kusama is a Japanese artist who has been active since the 1950s. When she is not working in her studio in Japan or overseeing her popular installations, she lives in a mental hospital a couple of blocks away. She has experienced hallucinations from an early age that appear as “flashes of light, auras, or dense fields of dots.” When Katie and I walked into the room, and the door we entered through closed behind us, I experienced the exact opposite of claustrophobia. The walls and ceiling are made up of mirrors. The floor is white and scattered large neon coquelicot polka dots. These reddish-orangish dots also cover the three white mannequins with grey wigs who stand in various poses within the room. The effect the mirrors creates is that of infinite repetition. Katie and I stood amongst the mannequins and began imitating their poses, walked around the box we were inside trying to find an end, and took photos of ourselves within this magical environment. I could have stayed for hours.  Continue Reading…

Guest Posts, Mental Health, Young Voices

The Day You Lose Your Mind

August 2, 2018

Note from Jen Pastiloff, founder of The Manifest-Station. This is part of our Young Voices Series for Girl Power: You Are Enough. We are always looking for more writing from YOU! Make sure you follow us on instagram at @GPYouAreEnough and on Facebook here.

By Jessica Young

It’s funny what they don’t tell you on the day you lose your mind.

Rhyme, reason, it all just dwindles away and you’re left with the bare bones…the soot.
The soot that is left is all of the debris you’ve left “for later”,
the “I can’t possibly handle this kind of emotional baggage” kind of debris.
The particles of dirt that gather at the base of your neck, weighing on your shoulders,
tangling up and knotting the muscle so you feel bogged down… weighed down… too heavy.

It’s funny what they don’t tell you on the day you lose your mind.

The weeks leading up to my Bipolar diagnosis were some of the most agonizing moments of my entire existence;
dissociations, delusions and absolutely no chance of sleep.
Sleep never comes.
You want it, you need it, you beg for it, but it just never comes.
The effects of sleeplessness on most people include many of the same effects for a person with Bipolar.
If you take that period of no sleep, combine it with some over the counter sleep medication
(twice the recommended dose because that’s all that seemed worked at the time),
combined with a prescription for Celexa (a drug that exacerbates the symptoms of Bipolar disorder)
and you get a recipe for a Manic disaster. Continue Reading…

depression, Guest Posts

This is not the end

July 8, 2018

By Tina Porter

In the Fall of 2014, when I knew the job I had held in a place I’d been working for 10 years was ending (though not yet officially), I did what anyone would do: I went on a trip with my mother and sister to Northern New Mexico.

Actually, this story starts much earlier. Does it start in April of that year when I am offered a demotion or no job at all and I take the demotion because we are in the process of closing on a condo for our daughters to live in while they attend Indiana University in Bloomington? Or a year earlier, when it is obvious I am struggling while juggling different roles and different requirements from different stakeholders?

Or does it start in 2009, when I take the promotion I think I want and that I am kind of good at, as it is defined in 2009 and three weeks later I am diagnosed with Lupus? Or does it start in 2008 when my father dies? Or in 1986 when I am a young woman at odds with her understanding of herself, or in 1976, when I am a teenager who doesn’t fit in and finds the options available unsatisfactory but I don’t know how to ask my mother or anyone for help? Continue Reading…

Guest Posts, Mental Health

The Howling Wounded Thing

June 11, 2018
howling

CW: This essay discusses suicide. If you or someone you know needs immediate help, please call 911. You can also call the National Suicide Prevention Lifeline at: 1-800-273-TALK (8255) or contact the Crisis Text Line by texting HOME to 741741. The world needs you.

By Beth Cartino

“I just want to get really high and then go to sleep forever.” They sits across from me in a dreary, unadorned office, knees tucked under their chin, arms hugging their legs tight to their chest, eyes peering out at me from behind a veil of midnight blue hair. This is the pose they adopt when they’re feeling exposed and vulnerable. They are in middle school, but they have the experience of someone twice their age, and right now, at this moment, they look painfully young.

“Have you been thinking about suicide?” My voice is even, my eyes unflinching. I notice a physical urge, like the one you get when you want to scratch your nose, to mirror their posture. I don’t. I ask myself a question I frequently ask when working with a kid who is thinking about suicide. What could somebody have said to me when I was twelve that would have stopped me from trying to kill myself?  I never can come up with an answer but this is the message I try to convey, not only with my words, but with every cell in my body: “You are loved. I see you. I will not judge you. I am here with you.  I am not going anywhere. You are not broken. You are not a problem that needs fixing.”

*** Continue Reading…

depression, Guest Posts, Mental Health

Couched

May 4, 2018
couch

By Tina Porter

It was way too early for a knock on the door, but there it was; and there I was, in my red terrycloth bathrobe. I hadn’t seen the two women come up the walkway, but here they were, looking back at me through the big window of the front door.

“Hi,” I said as I slowly opened the door, clamping one hand on the two frayed lapels of my robe while running the other hand over my just-out-of-bed hair.

“We’re sorry to bother you,” said the lady in the front, who had an officiousness that took me off guard as she stood there in clothes almost as worn as my robe. “Is that couch available? Would you care if we took it?” She pointed over her shoulder, to the chocolate-brown, ultra-padded, ultra-suede, three-cushioned couch sitting on the curb, between our mailbox and the garbage bins.

“Oh, no,” I said. “You don’t want it,” I shook my head and pinched up my face. “It’s so … gross.”

“I have a steam cleaner,” she said while the woman behind her looked over her shoulder at the couch, trying to hide the look in her eyes that betrayed she agreed more with me than with her friend.

“I’m not going to say no,” I said, after taking a deep breath, “because it is obviously out there for the garbage man. But ….” and I trailed off, mimicking repulsion with my face and with a shudder that ran through my body. Continue Reading…

Guest Posts, Mental Health

Spun

March 2, 2018

By Tessa Torgeson

I wore all black from the tip of my pointed witch’s hat, to my wig, to my boots. Meanwhile my younger sister Tara pranced around wearing her purple floral gown complete with a tiara, sparkly wings, and a light-up wand.

It was Halloween of 1991. The kitschy sounds of “Monster Mash” played as the banshee wind rattled the trees. The bite of a Midwest autumn day made our cheeks rosy and our fingertips white. We brewed apple cider, the warm tang of cinnamon sticks on our tongue.

Mom applied special rouge, pastel eyeshadow, and pink lipstick to Tara’s face. Now that Tara was it was my turn to feel like a movie star. Mom applied black lipstick, a hint of mascara, and white face powder to my face. It looked like a hideous mask that I wanted to peel off. I looked sickly; Tara looked ethereal.

The boiling point came when my mom drew a realistic wart on my nose with black eyeliner.  With hot tears running down my face, I stormed down the hall of our split-level house to my bedroom. I slammed the door with all the fury a five-year-old girl could muster and kicked aside the mess of Barbie dolls strewn on the snot-green carpet on Tara’s side of the room. Grabbing an Arthur picture book off the shelf, I grabbed my tattered yellow blanket, and curled into bed. I felt like I had just swallowed a porcupine, spikes of anger and jealousy jabbed me. Continue Reading…

depression, Guest Posts, Mental Health

The Me and The She

December 27, 2017
bear

By Adrienne LaValley

I’m a little blue today.  Not the Ceylon sapphire blue I’d love to be enveloped in. Royal blue, cerulean blue, turquoise like the ocean or any other variety of azure. The blue that leaves me confused, unsure, and downright loathing of anyone able to plaster a smile on their face. Fuck them. That kind of blue. Continue Reading…

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